LYME ANTHELMINTICS DOSING!

My FB friend T asked me:

"Hi Maria, What do you feel is the best Ivermectin dose? I too believe that a parasitic infection makes the most amount of sense, especially after rounds of Albendazole etc. have made me feel symptom free at certain stages of the illness.  Love your work, T.

Hello T,

The more I research I do,  and the more logic to use,  is that Lyme is a multiinfection bacterial yes, but for sure parasitic if not by name by action of the bugs.  Borrelia goes inside the cells, Mycoplasma too, and all the coinfections like Bartonella and Erlichia too?  Obviously Babesia is a parasite inside the blood so it has to be added to the pot of Lyme, and then the studies of Dr Sapi  in the UNH, the Boronson's in Norway and Dr Fry in Texas,  all talking about protozoans and parasites cannot be ignored as if it not happening? .. its even funny to hear it is a bacterial infection when it really is the least bacterial ..? I think if this concept is changed treatment could be more accurate... Why? just because you don't kill parasites with antibiotics, as you don't kill snakes with flea spray!!

The dose of Ivermectin that my Colombian Dr told me is one drop per one kilogram of weight, in the human drops that come at 0.6% concentration, given once a week.  This means the medicine is not administered daily, as US Drs do with the Stromectol, because the Ivermectin and the veterinary IVOMEC (1%) stay in the body 4 to 5 days until totally eliminated.  I wonder why the Stromectol is given every day?  Second it means a dose given according to the person, not a formula for everybody.  In my "calculations" I get around 3 to max 12 mgs of medicine a week, while here the dose is 12 mgs three times a day every day? ... its so high it doesn't makes sense to me...

My Col Dr said;  an acute infection should be treated with higher doses but in a short period of time, let's say two weeks max 4 weeks.  While a chronic long term multiinfected patient should receive low doses for long time to clean the infection and tons of detoxing!

The "Azoles" are the proper medicines for parasites in our case more than antimalarics due to these last ones work by immune suppression and we don't need that...:)  The Albenda is the "oldest" one and stronger.  It kills malaria too, but in long term treatment it can affect the Central Nervous system.  Studies in children found they were having similar symptoms as Parkinson's such as involuntary movements, etc, so it looks like Albenda is not for Lymies in the long run, maybe just for a short two weeks support.  The feared Flagyl - Metronidazole- is the always good old treatment but here in the US Drs give 2 grs a day or IV even stronger, it can blow the liver and the heart... my Dr told me to not use more than 750 mgs a day!!! See?  Dosing!

And from the Azoles, the Tinidazole, in the US known as Tindamax or "Tini" how we call it, is the youngest of the family, and it has been studied lately thank God by or dear Dr. Eva Sapi, who found protozoan component in Lyme Disease, and she found Tini does more than Doxy in the Lyme treatment and if you decide to use the Doxy better accompany it with Tini to get better results; this because Doxy alone as per CDC recommendations would only push the bacteria to go cystic faster and people get sicker faster too! In my personal case Tindamax was not a medicine that I felt helped me as I can swear over flagyl and Ivermectin... I thought it was too mild and blah.. maybe for all the Lymies who have not had any kind of anthelmintics – antiparasitics- this could save their lives? Because tindamax and these types of medicines kill the bacteria and also ruptures the cysts! (I attached some links of interesting articles written by Dr Sapi and Dr J about Tindamax, below).

 So why Ivermectin?  because studies show that it can even help with parasites, some types of bacteria and even some fungal infections? And because it has helped me so much!!! There is so much to it and US Drs don’t even want to try it???  I swear over the bible I have no commercial interest in this medicine and I talk about it because it helps me and has helped so many I found on my path, so I share the info so each one decide if to take it or not.  I wish I could educate Drs and researchers about it.  I have given samples for free to patients, Drs and researchers and the results are amazing… I hope it is included in most protocols!

Thank you for sharing with me and saying you "love my work", I only share what I have learned hoping it helps others, and I'm thankful with God for giving me this opportunity!

Hope I responded your question.  I cannot tell anyone how to dose because I am not a Dr, so you made the right question indeed!

God bless you, God is big!

Note: here is one of  the studies of Dr Sapi about the use of Tindamax: 

http://www.dovepress.com/evaluation-of-in-vitro-antibiotic-susceptibility-of-different-morpholo-peer-reviewed-article-IDR

And this is a piece of the blog of Dr J in his blog LYMEMD,  his amazing findings about Tindamax and his input about Dr Sapi’s studies:  “I cannot cover the whole Sapi study. The most exciting finding is that Tindamax (Tinidazole) - our premier Cyst-buster, is the most effective drug overall. This "cyst-buster" kills 90% of cysts and spirochetes: by far the best drug. We don't know it's effect on L-forms, but we can guess. Tindamax probably works by an intracellular mechanism. If this is true it should be equally effective against L-forms.  It gets even better. Tindamax is the only drug which does a great job on biofilm colonies as well! (not to be discussed now). More on biofilms later. 
Tindamax passes the blood brain barrier and penetrates well into most tissues. It has been effective in my patients with neurocognitive deficits - neuroborreliosis.” The complete blog is here: http://lymemd.blogspot.com/2011/07/everything-you-thought-you-knew-about.html

I just hope testing would be more reliable so people who is recently infected could be treated properly and soon enough so they won't suffer so long and so much as we had.!

Maria.

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVES,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.

LYME DISEASE, TRUST YOUR GUT!!

Some were wondering if I got cured from Lyme Disease, or if I was sicker,  because I was not posting anything here. I can say I stopped writing this blog because I dedicated to my group called Florida Lyme League and was bringing all the research to them and to my wall in Facebook, so now I'm back and hopefully soon I will start a new blog with videos that I think are going to be very teaching helpful for all.
I have learned a lot about Lyme and Chronic diseases but I guess I have learned much more about human nature and also about my body and about what to do when I'm not feeling well.So I'm not writing this blog today about Lyme or the human nature but about what to do when you feel this sick and are so desperate and cannot find answers in the Doctors or the internet nor your closer people can help you? I say pray with what ever words you have and what ever faith you have, and ask for personal knowledge and then, with no doubt FOLLOW YOUR GUT!  It doesn't fail! I'll give you some examples.
My friend was told to drink a lot of water, to detox, so she calls me and tells me that every time she drank a lot of water she got swollen and got terrible pains all over, I just asked her, so what do you think you should do?  She said I cannot have all that water, it is not helping me... see?  She had the answer to her problem.  Then the point was to find the cause why she is retaining liquids and getting swollen?  Maybe the gallbladder is blocked and the Lymphatic system is not running properly?  Maybe the kidney is producing more water or not processing it properly? Maybe your adrenals are in fear mode, and they're telling the kidney to fill everything with water to "clean the mess"?  Maybe it is a allergy with mold and the body is trying to wash it out..?  I can go long with this reasoning and probably I still be missing the cause - which of course in a person with Lyme the base cause is probably a pathogenic - a "bugs cause"; but what I try to say here is that if we follow our guts we might know, first hand, what to do and then we can try to find the cause to fix the problem from the base.
More over, we could stop our selves from more symptoms for example, headaches.  I start looking when I got them and then trying to find why? so I noticed that every time I eat dessert I  got a terrible headache and worse I got so moody and I could even become very angry... so, no need to get a lab test to tell me I am having sugar problems, Nor i needed a Doctor to tell me I needed to make an effort and stop it from my diet.  Same thing with the gluten.  I don't have a Dr telling me I have to be in a "gluten free diet", I found it by stopping all gluten for two weeks and seeing that my body swelling started to come down... while my friends who have a Dr telling them to do the restriction they have gluten "every now and then" thinking the Dr won't notice it.. :) Same with sugars and even alcohol... My friend from the Group has chocolates and peanut butter almost every day regardless of  her Doctor's recommendations.  One day she showed me her back full of blisters filled of infection, I asked her if this could be her liver or a result of eating fats or chocolates? And she immediately responded very defensive that she was never going to quit the chocolate "because it is the only thing I have left"... I wonder if life and health is not the ultimate "thing" we should keep?
So this means that if you follow your gut and you really want to recover you are going to have to do changes with a strong personal will over what ever anyone tells you to do or not.  It is like quitting a vice "cold turkey".  It is a personal way and there is no other way to do it!
When following my gut I found my swelling comes from bacteria/parasitic infection, that clogged my blood, my gut, my gallbladder and liver and the glands of my body.  With this I have to see what to do to help the body to recover.  Diet is one, exercise could be other option but my body seems to not be able to take it yet, so I started with something "easier" like trying to be able to sweat!  I had the neurological Lyme that affected the part of the brain that won't let me sweat nor recover the heat - sympathetic / parasympathetic functions were diminished -  but after treatments with some oral antibiotics and Ivermectin - antiparasitics- and the very blessed "Double helix water"  I found I started to sweat, a little - so I searched for a infrared sauna until found one suited to my small pocket and I think I have now recovered my ability to sweat and with this I started to detox and liberate my body from swelling and toxins.
See?  little remedies and small changes can make a huge impact in our health. But our body will always tell if the medicine, the treatment, the remedy or the change is good or not, and even before having any treatment our gut is telling us what is needed to help our selves.  
With this I would like to make a side note about what we call "HERXING". We have learned that when we treat for Lyme Disease the body reaction is so strong we feel much sicker, sounds to be obvious after having so much infection spread all over; but I have learned some Lymies and even Doctors only guide their treatment to when they feel the sicker thinking they are having a huge herx, meaning a great response of their bodies., but I confess I've done quite the opposite... I learned from the Dr writer of the blog LYMEMD, from my Colombian Doctor and from Integrative Doctors such as Dr Lee Cowden, that suffering doesn't mean we are healing, it could be a misconception and guide us in a wrong way. Dr J states that if you don't start to feel any better after two weeks of treatment you better start thinking what to do next. Dr Cowden has a protocol, herbal, that includes Burbur and other medicines that will help to deal with the strongest herxings, without this being a cover up of what is going on with the disease.  My Col Dr used the "old logic":  if it doesn't help you feel better what for you treat"?  and he taught me to always keep checking the reactions of my body, after every med taken, after every food, and every remedy.  I found that when I took my once a week dose of Ivermectin, the antiparasitic so feared int he US but so used in South America and Africa, not only I had a mild herx the first two days but then I start having a couple of hours a day feeling a bit better.  Some without Lyme won't understand what is to have a "couple of good hours" but for us who suffer this disease we know this is priceless.  So after this I decided I will look more for "good herxing" than feeling sicker.  I can take an antibiotic and can tell exactly when it is kicking in, what is it doing and after a couple of days I can tell if it is working to my recovery or not.  Doesn't mean I change treatments every day, by the contrary, I stick with the ones that have really helped me and this has been what has kept me alive and living a decent life during all these years of nightmare.
Follow your gut is believing that your body is telling you what is the problem and what it needs. Help your self studying, reading, watching videos and doing all it takes to find answers and responses to your needs.  Do not stay with thinking you are sick and one week of antibiotics is all you can have, it is a lie orchestrated to save money of the insurances that don't want to pay for longer treatment.  Do not stay still without looking for other treatments out of the box, like a simple adding bicarbonate to your water or taking castor oil to detox your colon - or a colonic or a coffee enema -.  You have the strength to recover, count on it!
BLESSINGS!


NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVES,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.

LYME DISEASE, DO NOT TAKE ANTIMALARIALS!

 Will start to share here the dialogs I have in my Facebook page with my Lymie friends. I have more than 800 friends with Lyme Disease in the US and the world; and 400 in Florida; yes Lyme Disease is real! Note: will not show the names of my friends unless they give me permission to do it.

Maria LymeDisease

CONFIRMED: ALL ANIMALARIALS ARE IMMUNOSUPPRESSANTS not good for Lymies!!! Included Mepron or Atovaquone, Qinnine, Plaquenil, (Hydroxychloroquine), Clindamicin and other. Yes we need to treat Babesia, the parasite inside the blood transmitted by the tick, kind of similar to the malaria falsiparum parasite, but because we have another lot more of infections going on, transmitted by the tick at the same time that we call "co-infections"  we should not, must not, take anything to suppress our Immune system; this is the reason why my Dr said to better take "anthelmintics"! http://en.wikipedia.org/wiki/Anthelmintic

Anthelmintic - Wikipedia, the free encyclopedia

en.wikipedia.org

Anthelmintics or antihelminthics are drugs that expel parasitic worms (helminths) from the body, by either stunning or killing them. They may also be called vermifuges (stunning) or vermicides (killing)

Note: the few Doctors in the US that dare to give anthelmintics for Lyme are treating with ALBENDAZOLE which was demonstrated to cause damage in the Central Nervous system, this was seen in children who were presenting symptoms like Parkinson's; Ivermectin was found to be the less damaging and the best anthelmintic ever created. No I don't sell anything, just sharing my research and experience.

G. B. ‎Maria, are you still taking Ivermectin? How long do you think you'll need to be on it? How are you feeling lately? Do you feel you're overcoming this disease by treating with anthelmintic meds? 

Maria LymeDisease Yes and no and yes. I was taking it every week, feeling better every day. Decided to stop it after a year or so to see what happened, getting sicker, swelling and not good; needed to know if I was "cured" or still needed treatment. Going back to ivermectin tonight. I have "experimented" getting swollen, very sick to my extra limit, then taking the Ivermectin and voila, miracle, doing super good one or two or max three days later... how long? It seems it depends on how infected, invaded the person is. As Dr Phillips (West Palm Beach) said, until every parasite is not expelled or killed there will be Lyme!

My dose has been just 3 ml a week, imagine that, being functional, living fine, doing many things; of course I still need help to detox,and help for other symptoms like the thyroid or heart but as you know I do not have a Dr nor money so it is what I do with God's help and my beloved Dr who answers my questions by phone. I do think you can overcome Lyme with Ivermectin but not alone, I mean Ivermectin and other medications or herbals or treatments like for example bactrim for the smaller bacteria like Mycoplasma and herbals or supplements! 

G. B. Makes me wonder if this battle can ever be won. I haven't read too many people who've been treating parasites say they were "parasite free". Many people who have been on anti parasite meds or herbs for years and still have them. Not very encouraging. Sorry you regressed when you got off Ivermectin, but glad your doing better now that you're on it again. Praying for you!

Maria LymeDisease Lyme is indeed very discouraging lol! Not just saying parasite free, I think it is not bacteria Borrelia free and this one going inside the white blood cells is the one allowing the proliferation of so many other organisms that other wise could be controlled. That is the basic problem; parasites "die easy" but they reproduce in thousands every month if not every day; if the bacteria is there feeding them, and them feeding the bacteria with their "left overs" the problem is much harder to eradicate. 

Plus in my specific case, I was diagnosed late, my stronger symptoms started in 2005, I had antibiotics orals sporadically, enough to not die; was dgx in 2009 - the labs showed an acute infection, imagine that, how invaded I was. Continued with oral abx including plaquenil and other that the LLMD gave me and those hurt me more instead of helping, and just after that was when I found the ivermectin thanks to the Colombian Doctor who suspected parasites too. I am sure that if parasites are treated since the beginning, or as soon as possible, Lyme could be eradicated as the malaria is. Do you know malaria could be cured in 3 days? THREE DAYS? I saw my husband recovering from it in three days with a medicine called Fansidar; could this be possible with Lyme but the market prefer to have us sick for interminable years? hope not!

In 2009 my labs showed Borrelia CDC positive; babesia type WA1; and the wet Mount lab showed two more microorganisms "swimming" in my blood, some small round numerous, resembled toxoplasmosis but they said were similar not recognized; the other elongated not as numerous don't know what are those. Imagine someone surviving to just 4 zoonotic infections? this without even been tested for mycoplasma, bartonella, or viruses? so my Colombian Dr said do not take antimalarials could make you sicker, so I stoppped the Plaquenil the LLMD sent me, never went to see him again; and then started Ivermectin in 2010 I guess? 

Imagine if instead any of the first TEN doctors i saw would have given me Ivermectin? I saw family practitioners, Infectious Disease specialists; Endocrinologists, heart specialist; another four more family ones; even Drs to whom I worked for free as a medical interpreter.. what if instead of not treating me at all one would have given me Ivermectin for a couple of months? lol ... Ignorance is not bliss!

Many friends here are trying the Ivermectin, most write me sentences saying something like: this is weird, I am feeling fine!! lol! Seriously!!! It is like not feeling exploding inside anymore, like the chest is not ripping apart, like your cells are part of your body again!

Let me clear that I started to get sick three months after I stopped Ivermectin and had no other medicines at all, something I wasn't able to have in years, before, anytime i stopped the antibiotics, in two days I was in the deepest sickest place; my swelling now started after three months, so this is great news.

My Dear friend F. K. just called to to say that when people asks her about for how long her son Bobby needs to be treated she responds, who ask a diabetic for how long he needs to take insulin? Lyme Disease needs to be treated as long as there is infection! Yes Mam!



E. F. Side effects of Ivermectin. Where do you get this stuff?

PD R:   Maria I asked my mom about getting a doc in Ecuador to send me ivermectin; but supposively u can get horrible nuero side effects that can be irreversible ; any experience with this ???

D R Makes me happy I followed my gut instincts and said no to most all treatments. Artemisinin did wonders for me

PDR Ms Dana How did you dose Artemisinin ?? that's an herbal right ??



Maria LD Dear Dana sorry to tell you Artemisin as the other anti-malarials work in the immune system and suppress it, in fact, this is the reason why I am getting sicker dear G B; I started a couple of days ago a herbal medicine made from "Sacred medicine Sanctuary" that contains Artemisa Annnua, oh God, and the more I took it the more swollen I get... this is kind of funny, me writing to everyone to not take antimalrials and taking it and getting sicker by the minute. Yes, back to ivermectin tonight!



Maria LDSo just to clear this up, I am swollen not because I stopped the Ivermectin but because I started a treatment with Artemisa annua, precisely what I was posting to not do I was doing, oh yeah, live and learn; thank God I found out on time, I'm about to explode!! Where is my Ivermectin caramba lol!



Maria LD: E F and P D R by the contrary Ivermectin seems to be a helper with the neurological infection; it is an anthelmintic made to kill parasites and protozoans; Lyme is a bacteria Borrelia that goes intracellular, especially inside the white blood cells - parasitic?; - the Babesia is a parasite inside the red blood cells, in fact two parasites jump inside the red blood cells at the same time, double worse than the malaria; so, if we must not get anti-malarics because those work by immunesuppression, what to take? anti-parasitics, antifilarials andti-protozoans than won't hurt the immune system nor the Central Nervous system. I have taken Ivermectin for more than a year, small doses and it has been a blessing, by the contrary the Bells Palsy and the neurological symptoms are gone! (The Dr has the Bells Palsy registered in my record, but I don’t have it anymore nor even a small twist in my face!) God is big!

These are my opinions and my conversations with my friends!I hope they are of some help to others suffering not knowing what is going on!  It is not a medical advice nor intends to replace any medical information.


NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVES,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.