LYME DISEASE, DO NOT TAKE ANTIMALARIALS!

 Will start to share here the dialogs I have in my Facebook page with my Lymie friends. I have more than 800 friends with Lyme Disease in the US and the world; and 400 in Florida; yes Lyme Disease is real! Note: will not show the names of my friends unless they give me permission to do it.

Maria LymeDisease

CONFIRMED: ALL ANIMALARIALS ARE IMMUNOSUPPRESSANTS not good for Lymies!!! Included Mepron or Atovaquone, Qinnine, Plaquenil, (Hydroxychloroquine), Clindamicin and other. Yes we need to treat Babesia, the parasite inside the blood transmitted by the tick, kind of similar to the malaria falsiparum parasite, but because we have another lot more of infections going on, transmitted by the tick at the same time that we call "co-infections"  we should not, must not, take anything to suppress our Immune system; this is the reason why my Dr said to better take "anthelmintics"! http://en.wikipedia.org/wiki/Anthelmintic

Anthelmintic - Wikipedia, the free encyclopedia

en.wikipedia.org

Anthelmintics or antihelminthics are drugs that expel parasitic worms (helminths) from the body, by either stunning or killing them. They may also be called vermifuges (stunning) or vermicides (killing)

Note: the few Doctors in the US that dare to give anthelmintics for Lyme are treating with ALBENDAZOLE which was demonstrated to cause damage in the Central Nervous system, this was seen in children who were presenting symptoms like Parkinson's; Ivermectin was found to be the less damaging and the best anthelmintic ever created. No I don't sell anything, just sharing my research and experience.

G. B. ‎Maria, are you still taking Ivermectin? How long do you think you'll need to be on it? How are you feeling lately? Do you feel you're overcoming this disease by treating with anthelmintic meds? 

Maria LymeDisease Yes and no and yes. I was taking it every week, feeling better every day. Decided to stop it after a year or so to see what happened, getting sicker, swelling and not good; needed to know if I was "cured" or still needed treatment. Going back to ivermectin tonight. I have "experimented" getting swollen, very sick to my extra limit, then taking the Ivermectin and voila, miracle, doing super good one or two or max three days later... how long? It seems it depends on how infected, invaded the person is. As Dr Phillips (West Palm Beach) said, until every parasite is not expelled or killed there will be Lyme!

My dose has been just 3 ml a week, imagine that, being functional, living fine, doing many things; of course I still need help to detox,and help for other symptoms like the thyroid or heart but as you know I do not have a Dr nor money so it is what I do with God's help and my beloved Dr who answers my questions by phone. I do think you can overcome Lyme with Ivermectin but not alone, I mean Ivermectin and other medications or herbals or treatments like for example bactrim for the smaller bacteria like Mycoplasma and herbals or supplements! 

G. B. Makes me wonder if this battle can ever be won. I haven't read too many people who've been treating parasites say they were "parasite free". Many people who have been on anti parasite meds or herbs for years and still have them. Not very encouraging. Sorry you regressed when you got off Ivermectin, but glad your doing better now that you're on it again. Praying for you!

Maria LymeDisease Lyme is indeed very discouraging lol! Not just saying parasite free, I think it is not bacteria Borrelia free and this one going inside the white blood cells is the one allowing the proliferation of so many other organisms that other wise could be controlled. That is the basic problem; parasites "die easy" but they reproduce in thousands every month if not every day; if the bacteria is there feeding them, and them feeding the bacteria with their "left overs" the problem is much harder to eradicate. 

Plus in my specific case, I was diagnosed late, my stronger symptoms started in 2005, I had antibiotics orals sporadically, enough to not die; was dgx in 2009 - the labs showed an acute infection, imagine that, how invaded I was. Continued with oral abx including plaquenil and other that the LLMD gave me and those hurt me more instead of helping, and just after that was when I found the ivermectin thanks to the Colombian Doctor who suspected parasites too. I am sure that if parasites are treated since the beginning, or as soon as possible, Lyme could be eradicated as the malaria is. Do you know malaria could be cured in 3 days? THREE DAYS? I saw my husband recovering from it in three days with a medicine called Fansidar; could this be possible with Lyme but the market prefer to have us sick for interminable years? hope not!

In 2009 my labs showed Borrelia CDC positive; babesia type WA1; and the wet Mount lab showed two more microorganisms "swimming" in my blood, some small round numerous, resembled toxoplasmosis but they said were similar not recognized; the other elongated not as numerous don't know what are those. Imagine someone surviving to just 4 zoonotic infections? this without even been tested for mycoplasma, bartonella, or viruses? so my Colombian Dr said do not take antimalarials could make you sicker, so I stoppped the Plaquenil the LLMD sent me, never went to see him again; and then started Ivermectin in 2010 I guess? 

Imagine if instead any of the first TEN doctors i saw would have given me Ivermectin? I saw family practitioners, Infectious Disease specialists; Endocrinologists, heart specialist; another four more family ones; even Drs to whom I worked for free as a medical interpreter.. what if instead of not treating me at all one would have given me Ivermectin for a couple of months? lol ... Ignorance is not bliss!

Many friends here are trying the Ivermectin, most write me sentences saying something like: this is weird, I am feeling fine!! lol! Seriously!!! It is like not feeling exploding inside anymore, like the chest is not ripping apart, like your cells are part of your body again!

Let me clear that I started to get sick three months after I stopped Ivermectin and had no other medicines at all, something I wasn't able to have in years, before, anytime i stopped the antibiotics, in two days I was in the deepest sickest place; my swelling now started after three months, so this is great news.

My Dear friend F. K. just called to to say that when people asks her about for how long her son Bobby needs to be treated she responds, who ask a diabetic for how long he needs to take insulin? Lyme Disease needs to be treated as long as there is infection! Yes Mam!



E. F. Side effects of Ivermectin. Where do you get this stuff?

PD R:   Maria I asked my mom about getting a doc in Ecuador to send me ivermectin; but supposively u can get horrible nuero side effects that can be irreversible ; any experience with this ???

D R Makes me happy I followed my gut instincts and said no to most all treatments. Artemisinin did wonders for me

PDR Ms Dana How did you dose Artemisinin ?? that's an herbal right ??



Maria LD Dear Dana sorry to tell you Artemisin as the other anti-malarials work in the immune system and suppress it, in fact, this is the reason why I am getting sicker dear G B; I started a couple of days ago a herbal medicine made from "Sacred medicine Sanctuary" that contains Artemisa Annnua, oh God, and the more I took it the more swollen I get... this is kind of funny, me writing to everyone to not take antimalrials and taking it and getting sicker by the minute. Yes, back to ivermectin tonight!



Maria LDSo just to clear this up, I am swollen not because I stopped the Ivermectin but because I started a treatment with Artemisa annua, precisely what I was posting to not do I was doing, oh yeah, live and learn; thank God I found out on time, I'm about to explode!! Where is my Ivermectin caramba lol!



Maria LD: E F and P D R by the contrary Ivermectin seems to be a helper with the neurological infection; it is an anthelmintic made to kill parasites and protozoans; Lyme is a bacteria Borrelia that goes intracellular, especially inside the white blood cells - parasitic?; - the Babesia is a parasite inside the red blood cells, in fact two parasites jump inside the red blood cells at the same time, double worse than the malaria; so, if we must not get anti-malarics because those work by immunesuppression, what to take? anti-parasitics, antifilarials andti-protozoans than won't hurt the immune system nor the Central Nervous system. I have taken Ivermectin for more than a year, small doses and it has been a blessing, by the contrary the Bells Palsy and the neurological symptoms are gone! (The Dr has the Bells Palsy registered in my record, but I don’t have it anymore nor even a small twist in my face!) God is big!

These are my opinions and my conversations with my friends!I hope they are of some help to others suffering not knowing what is going on!  It is not a medical advice nor intends to replace any medical information.


NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVES,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.

LYME DISEASE, AYUDA A LA ORGANIZACION MUNDIAL DE LA SALUD!

Si no son ustedes, entonces ahora quien podra ayudarnos?

Como tengo Lyme Disease, Babesia, Bartonella y otras co-infecciones le escribi pidiendo ayuda a unos medicos muy especializados de mi pais Colombia, eminencias en enfermedades infecciosas, parasitarias y enfermedades Tropicales, pero me respondieron diciendo que era raro tener varias infecciones al mismo tiempo que la Borreliosis transmitida por la picadura de la garrapata.  Esto lo dicen basados en sus libros, con el debido respeto, polvorientos y desactualizados porque la realidad que vive el planeta es otra bien diferente y dura, por lo cual apelo a todos quienes puedan aportar de una u otra manera y a la OMS -WHO por sus siglas en ingles- a que nos ayuden a encontrar tratamientos oportunos y adecuados.  Esta es mi carta de respuesta y de pedido de ayuda a los medicos y cientificos quienes quisieran reconsiderar sus conocimientos sobre el Lyme Disease:

Lastimosamente no soy ni la primera ni la ultima en tener mas de una co-infeccion sumada a la Borrelia, por el contrario al parecer solo los Europeos parecen ser quienes no tienen tales co-infecciones.  Peor aun aqui en USA la lista de co-infecciones como resultado de la picadura de la garrapata parecen ser interminables en un mismo individuo, nombres como Babesia, Bartonella, Mycoplasma, tularemia, Erlichia, Rickettsia, infecciones filariales tipo Ceguera del Rio, tipo toxoplasmosis y muchas otras son nuestro dia a dia.  No soy la excepcion. Ver cuadro:

http://www.lymedisease.org/lyme101/coinfections/tick_chart1.html

Y una frase sobre co-infecciones del Dr Klinghardt quien tiene mucho exito tratando el Lyme aqui en USA:

"It is our experience that most Lyme patients, by the time the infection has become chronic, have multiple parasites in their bowel. Co-infections from the herpes virus family, Coxsackie's viruses, influenza viruses, echo viruses and the measles virus seem to be common. Frequently they also have one of several mycoplasma species present and a multitude of other bacterial infections. Fungi always thrive in a Lyme-infected patient. The treatment therefore needs to be broad based and address all these co-infections in order to succeed. Treatment for Lyme disease is often unsuccessful when it targets only the Lyme spirochete but not the existing co-infections."

Osea, esto no es un invento mio!

Por eso les escribi, porque ustedes pueden conocer  estas infecciones mas que los medicos de aqui y pueden saber tratarlas.

solo por confirmar lo que digo copio aqui una frase del blog del Dr J., quien fue quien el medico quien me diagnostico en

el 2009:  "A large percent of patient have the BBB triad: Borrelia, Bartonella, Babesia."  Osea la mayoria minimo tenemos la triada BBB, ademas que ya encontraron Mycoplasma y filarial como una constante: Esto lo dijo en el Doctor en el 2010, aqui su  blog completo: 

http://lymemd.blogspot.com/2010/01/lyme-2010-brief-update.html

Ya esto es reconocido por muchos medicos en USA y como les dije es el dia a dia de nosotros los pacientes,

quienes tenemos que sobrevivir a las muchas co-infeccines; no son casos aislados ni raros, es lo "comun".  Hay muchisima literatura medica al respecto que bien les puedo enviar si les interesara.  Es tanto asi que se habla de una "arma biologica" por la multiplicidad de infecciones bacteriales, parasitarias, viruses y hasta hongos todas al mismo tiempo; es decir, los libros tradicionales medicos sobre Lyme Disease estan desactualizados y desinformando a los mismos medicos.  Repito por eso estoy buscando ayuda de personas mas expertas en infecciones y que puedan considerar la importancia y gravedad del asunto.  No por mi o para curarme a mi, solo por sembrarles la semilla de la duda de lo que se avecina o que ya llego.

3.  Las investigaciones de la Doctora Eva Sapi, aqui en USA; y las investigaciones de los primos Boronson en Noruega han mostrado resultados altamente positivos para eradicar la Borrelia con Tinidazol o Tindamax, y han hecho estudios con Flagyl y otros; esto porque la Borrelia toma muchas formas y no es posible de controlarla solo con antibioticos como se decia anteriormente; se habla de quistes, de biofilms y de muchas formas que toma la bacteria para evadir los ataques y por ello se investigan tratamientos diferentes, entre ellos se ha hecho mucho enfasis en el uso de antimalaricos como la hierba Artemisia o la llaman Artemisinin tambien.  La Dra Sapi ha retomado los estudios del Dr Burgdorferi -descubridor de la Borrelia en los ticks- y encontro que las garrapatas estas tienen no solo la bacteria Borrelia, sino Mycoplasma y unos protozoarios filariales; dice ella que de ser confirmados requeririan tratamientos antifilariales, palabras textuales.  En mi experiencia la Ivermectina me salvo la vida, pero imagino mi experiencia no dice mas que lo que digan los libros o los cientificos.  Aqui copio un enlace del video de la Dr Sapi cuando habla de sus hallazgos:

http://www.youtube.com/watch?v=AmvgOfIN_8c

Y este es un enlace otra vez del Dr J cuando habla de tratamientos con Tindamax o Tinidazol para mostrarles que los antiparasitarios son casi que obligatorios ya para tratar el Lyme: - les cuento que cuando yo hable con el personalmente sobre Flagyl, Bactrim o antiparasiticos este Doctor casi se me rie en la cara, me dijo "no trato con antiparasiticos y esta demostrado que no sirven en Lyme Disease"; esto fue en el 2009, hoy pueden leer su blog cuando afirma lo opuesto:

"I cannot cover the whole Sapi study. The most exciting finding is that Tindamax (tinidazole) - our premier Cyst-buster, is the most effective drug overall. This "cyst-buster" kills 90% of cysts and spirochetes: by far the best drug. We don't know it's effect on L-forms, but we can guess. Tindamax probably works by an intracellular mechanism. If this is true it should be equally effective against L-forms. It gets even better. Tindamax is the only drug which does a great job on biofilm colonies as well! (not to be discussed now). More on biofilms later. Tindamax passes the blood brain barrier and penetrates well into most tissues. It has been effective in my patients with neurocognitive deficits - neuroborreliosis."

http://lymemd.blogspot.com/2011/07/everything-you-thought-you-knew-about.html

Lo que quiero traerles es lo que estamos viviendo los enfermos de Lyme Disease, una constelacion de sintomas ademas incurables, enfermedades interminables sin respuestas concretas, con tantas negaciones y tantos obstaculos que deberian ser resueltos por el bien de la humanidad para evitar esto se propague y convierta en una pandemia sin limites.  Ustedes son los llamados a considerar la importancia de esta infeccion, llamese nueva o desconocida y buscar formas de tratamiento que eviten la propagacion y el sufrimiento de los pacientes.  como les digo, tengo 700 amigos en Usa y en Europa y Sur Africa, todos viviendo esto que yo vivo todos los dias, con problemas neurologicos, del sistema linfatico, cardiacos, y tantos sintomas hasta tener animalitos saliendonos por la piel.  Aqui hay muchos Doctores haciendo tratamientos con multiples antibioticos intravenosos al mismo tiempo y ya muchos empezaron a investigar la posibilidad de usar anthelminticos.  Hay un medico muy reconocido en Europa y ahora qui en USA quien se llama Dr Klinghardt.  El se ha dedicado a tratamientos de Lyme Disease y usa medicinas tradicionales y suplementos con hierbas y otros tratamientos poco cnvencionales.  Entre los muchos metodos que utiliza, solo para que vean la parte donde trata con antiparasitarios, en su "protocolo", noten que combina Pamoato de Pyrantel con Ivermectina, utiliza Nitaxozanida, Praziquantel y remata con Albendazol; si eso no es lo correcto entonces por que dice que tiene tantos casos con logros que no tienen la mayoria de los medicos tradicionales? 

http://www.klinghardtacademy.com/Lyme-Disease/

A ustedes les pido de corazon que investiguen sobre el Lyme Disease y que por su condicion de investigadores y profesores emeritos, Directores de entidades Nacionales de enfermedades Tropicales e infecciosas y miembros o participantes de la Organizacion Mundial de la salud, de encontrar validez en mi investigacion, alerten y generen proyectos para controlar, tratar adecuadamente y de ser posible eradicar esta infeccion que esta dejando cuadraplegicos y con demencia a quienes no se tratan debidamente; es una enfermedad dificil de diagnosticar y de tratar y se sufre largamente con ella, asi es que de ustedes depende el escuchar el clamor de quienes ahora necesitan de sus conocimientos y sus practicas cientificas y medicas para el beneficio de todos.

Esta carta la hare publica sin presentar sus nombres para no comprometerlos, pero para hacer el llamado a todos quienes crean que de alguna manera puedan ayudar con esta infeccion que esta azotando a los paises mas desarrollados los cuales por su condicion de super potencias la niegan o esconden para detrimento del mundo entero y de las personas que la estan sufriendo.  Apelo a su conocimiento y a su compasion.

Muchas gracias

MPJ.
Enferma de LD y Periodista Colombiana.

LYME DISEASE; TREATING BABESIA WITH ANTHELMINTICS

A friend of a friend asked me about what treatment did I use for for Babesia  because his Doctor gave him one week of Mepron and refuses to treat him longer; the friend of my friend thinks one week of treatment is not enough and is searching to get other possible treatments.   This is my answer:

“I guess E. told you to contact me because we have spoken before about ways to treat the parasites.  As you might know  Babesia is a big parasite that travels inside the red blood cells, imagine that, a bug living out of our life resource, so of course the anemia is huge and the symptoms are many. I found Babesia to be worse than malaria because the parasites of the malaria go inside the red blood cell but one at a time, the Babesia seems to be a gringo malaria smarter and stronger because two and sometimes three bugs go inside each red blood cell; "Babesia bigemina"? Means two! This is not to scare you but to show why it is indeed vital to treat it and as long as it is needed.

I am Hispanic, so I always heard about treating parasites in my home country, and then I traveled and lived in an area that was endemic of malaria, so this topic is not  new to me, what surprises me is to find it here in the US where in theory there are "no parasites" in the US,  and of course no infections of this type like in South America or Africa.  
So in my case living in Florida, after many Doctors and tons of not knowing what was wrong with me and after lots of suffering and finally treating with antibiotics for long time and not recovering I called my former family physician in Colombia and he remembered me and helped me by phone and all I am going to tell you and what I write in my blog is based on his teaching and my researching meaning, I am not an expert, nor the wise one here, just a friend willing to share and help if I can; at least I try.

The one thing about your case that calls my attention and I have seen here a lot is,  why Drs do not re-test?  Your Doc treated you, thank you, but he won't re-test to see if his treatment worked?  Who he thinks he is?  God? Or his treatment is the ultimate cure? Really?

To the point - finally sorry -

I have been taking Ivermectin - this is an anthelmintic, meaning anti-parasitic.  There are many medicines of this type, Flagyl, Tindamax and even herbs and garlic are part of the group (see in the bottom from Wikipedia the definition and types of anthelmintics).  The difference with Ivermectin is that this drug started as a veterinarian medicine - and if you permit me my opinion, medicines made for animals are made to cure them; the ones for us are made to keep us going to the Dr and taking more medicines to fill their pockets.

Seriously, it was a veterinary medicine and then used in humans and after twenty years or more using it in South America and in Africa the US is starting to use it.  In most parts it is used as antiparasitic and in Africa not only as anti-malarial but also to treat "filarial infections" such as "Onchoneriasis" or also called "River blindness".  As long as I've heard Mr. Burgdorferi said the ticks transmit a bacterium called Borrelia and also some protozoans of the filarial type; of course the medical community doesn't want to hear this and are consciously ignoring the filarial infection condemning the patients to not be cured!

For all this the Ivermectin seems to be the medicine to treat us, both filarial infections and Babesia.  But that is not all.  My Dr told me that Ivermectin was found to not hurt the Central Nervous system as many of the anthelmintics do; plus, he didn't want me to take regular antimalarials because those act by immune suppression and me, we, Lymies have multiple infections bacterial and parasitic that could be free of growing if there is immune suppression.  So again my Dr recommended me to take Ivermectin to begin with.  He said that if I needed to combine it, or to altern it from time time time I could take Alinia was his second drug of choice, again because it seems to not hurt the Central Nervous system as much.  In my country Albendazole is very used to treat malaria and parasites, but he preferred me to not take it if I could have Ivermectin instead or Alinia -Nitaxozanida. The "Albenda" as many call it her in the US was found to hurt the CNS to the point children were showing symptoms similar to Parkinson's. But a short treatment is good, not the long one intended for me.

So how to take the Ivermectin?  after seeing my labs my Dr said I had so many infections running at the same time and so many of them being parasitic, I must start very low in the treatment and do it for long time.  He said the strong treatments are better for the acute infections and when the patient is not that invaded yet.  By "invaded" I mean the parasites can lay from 250 to 250,000 eggs even per day, week or month, so the more they reproduce and travel around the body the sicker we are - invaded I mean! My Dr said the toxins the parasite release are the ones that make us sicker even more than having he parasite eating us alive, these toxins are released in bigger amounts when the bugs die (their poop in clear words); also the medicine itself to be able to kill parasites is a big toxin (now we are talking about two time toxicity when killing parasites), and the last third big toxin load we get is the bodies of the dead parasites, imagine these creatures dead and our body trying to get rid of them.  We need good bacteria to come eat these dead bodies –debris-, and we need to eat papaya and good digestive enzymes to help the belly and digestive process and then we need to detox with treatments like enemas and colonics to kick them out. Also Castor oil and Milk of magnesia help a lot!

Yes my first treatment was truly strong, I thought I was stronger than those bugs and I could kill them before they could kill me so i took a higher dose..  Of course I was wrong, lol, got so sick that I had to call my Doc and he almost yell at me: cut the dose in half and keep it long time, 3 to six months before considering to raise it to your regular dose; and that I did. I've been taking it once a week long time!

Which is the dose?  the Ivermectin sold in SA is a little bottle like tear drops and the dose is one drop per one kilogram ONCE A WEEK in my case due to my overload; meaning it is a dose according to each one's weight and condition, and it is not given daily due to the medicine stays in the body four days.  So if I was supposed to take 50 drops I started with 25 and just around the first year I was taking the dose for me.  I kept my antibiotics until I was able to not take them anymore, and I do probiotics and eat papaya every day and try to take some care eating without sugar nor carbs.

After all my meds from my home country were finished I looked for options here in the US.  I found the Ivermectin here is called "Stromectol" comes in pills, boxes of 3 or 6 pills and it is very expensive.  I guess these pills must be of a lesser concentration than my liquid human version because I found some Drs here, well Dr K who comes from outside of the US, gives 12 mgs a day and sometimes he gives 12 mgs three times a day for two weeks and to some patients he has given them this "megadose" every day for one month? I called my Dr and asked for his opinion.  He was the one that concluded that probably the pills were less concentrated and could be given in such amounts.  The dose I've taken is barely 3 mgs once a week, and I have not had any bad reaction and I can talk about recovering.  So Stromectol is one human version in pills. Ivermectina gotas the human in drops bottles of 6 ml. The other option is Ivomec, injectable ( for cows)  but people in the rural areas of my country swallow it in small doses for the malaria.  I learn in the US this is considered a illegal idea so, just for information purposes as where it is taken and how much.

(Due to I have to buy everything out of pocket and help myself with God's help, I looked for more alternatives and asked my Dr about the veterinary versions of Ivermectin.  -My husband's relatives told me that the people living in the endemic areas injected themselves with "Ivomec" the Ivermectin made for cattle; they used one cm for 50 KILOS of weight.  - Well, my Dr said this medicine is as good as the human one and could be taken orally too.  He said he preferred the oral method to be able to control the dose according to the weight, and better absorption of it. I found the Ivomec very cheap in the internet but I think I don't have four stomachs as the cows do, so I looked into horse medicine because we all know these animals are the most expensive and the medicine for them is the very best.  I found many versions of horse Ivermectin for just $4.99 and it called my attention one product called "Zimectrin Gold" because it contains Ivermectin and also "Praziquantel" another anthelmintic used for bigger bugs including treating for flukes which I suspect I have and many Lymies have found to have too.  I bought it for $13.99 a tube with higher concentration and with the amount for a horse of 1,250 pounds, meaning I found medicine for long term treatment at a price I could certainly afford.  I called my Doc again and he told me to reduce the dose to the half of the horse dosing.  So I take max the amount marked for 100 pounds if I weigh 200.  One thing you must know, this medicine is the bitterest nasty of the planet.  I put the little amount of paste in a spoon, and then I grab it with my finger and put it deep inside my throat and then swallow it with water and try to eat some peanut butter or anything to pass that taste.  But listen, my Dr told me to have Ivermectin with the stomach empty, not meaning fasting but for example before going to sleep, two hours after my last meal.  This I did once a week and after feeling so good I stopped all medicines for a month, then tried another one called Triventor because this one has "Triclabendazole" to treat the flukes and just took two doses in two days and have not had any treatment since this two months ago and I pray thanking God every day I feel better and recovering!  Is this the cure?  I don't know, cannot tell yet; plus my heart and my body are still very battered after six years of antibiotics and extreme illness so I still won't sing victory, but yes I am feeling well.)

I share my experience and all my thoughts in my blog hoping to bring some light to others - many- who could be as desperate as I was after being so sick and the sicker I was the more Drs dismissed me.  I'm not saying take this medicines nor do as I did, just research and find out that Lyme Disease is also a parasitic infection and we will continue to be sick if Drs don't treat the parasites that came with the tick bite, I don't mean only the regular intestinal parasites but parasites in our blood inside our red blood cells, inside the white blood cells and inside our tissues, organs and everywhere!  
Denying the parasitic infection that comes from a vector borne infection is the most cruel ignorance of the medical field in the US.

I pray for Dr J in Maryland who diagnosed me and for my Dr JQP who takes my phone calls.  I have no words to thank my family for sending me so many medicines and to all who help me here; but my reason of doing all I do is to help my Lymie friends because there has to be light out of this tunnel and it looks like I found a piece of this puzzle I need to share, for free with no commercial obligations nor compromises.  Yes take antibiotics as needed but to recover from Lyme Disease and Babesia you do need anthelmintics. My thinking.  
May God guide me to say and do what is correct every day amen. May God guide you to do what you need to do to recover and heal.  I pray for your recovery and hope to share this light with love and happiness, wooo hooo, to recovery we go!

Hugs and big hugs to my friend E!!!!!!!!!!!!!

Note: 

EGCG

Would like to add a link to a great information my friend CH just sent me, it is a study made in Japan that shows that patients who received this medicine taken from the green tea "significantly (P<0.05) inhibited the growth of B. microti at doses of 5 and 10 mg/kg body weight, and the parasites completely cleared on day 14 and 16 post-inoculation in the 5 and 10 mg/kg treated groups, respectively. These findings highlight the potentiality of (-)-Epigallocatechin-3-gallate as a chemotherapeutic drug for the treatment of babesiosis.

PMID: 20025823 [PubMed - indexed for MEDLINE]" 

http://www.google.com/products/catalog?hl=en&cp=4&gs_id=5&xhr=t&q=egcg&gs_upl=&bav=on.2,or.r_gc.r_pw.&biw=1590&bih=737&um=1&ie=UTF-8&tbm=shop&cid=17031858793613554407&sa=X&ei=MU5bTrqGE8aftwfzy_S8DA&sqi=2&ved=0CDAQ8wIwAQ

Thank you all for sharing all these with me!!!

http://en.wikipedia.org/wiki/Babesiosishttp://en.wikipedia.org/wiki/Babesiosis

MARIA.

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.

LYME DISEASE: LA ENFERMEDAD DE LA GARRAPATA, TIENE CURA?

Mi amiga periodista me pregunta como sobrevivo a la enfermedad de la garrapata y si tiene cura?

(Nota: vivo en Florida y se supone que aqui no decimos "bicho" porque los puertorriqueños se ofenden pues  lo consideran una mala palabra que significa el organo masculino? pero para nosotros solo quiere decir animal pequeño o hasta microorganismo, asi es que perdonenme el uso de esa palabra en este mensaje).

Entonces LYME DISEASE - La Enfermedad de la Garrapata tiene o no cura?  Esta es mi historia y mi opinion:

Mi caso es severo como el de muchos aqui y este pais lo niega pues no quieren que se sepa que tienen una enfermedad tipo malaria - peor; si compararamos el parasito de la malaria se mete entre el globulo rojo para vivir alli, luego va al higado y luego al cerebro y termina matando a su huesped.  En la enfermedad gringa la picadura es de un garrapatica muy pequeña que no solo transmite una bacteria sino varios tipos de bichos entre bacterias y parasitos y aun no se sabe cuales son todos, solo se le ha dado nombre a algunos y curiosamente no matan al huesped sino solo luego de muchos años largos de sufrimiento... - hay quienes dicen que la garrapatita fue creada como parte de la guerra biologica y se les escapo de su centro de investigaciones de Plum Island?  En todo caso por comparar solo uno de ellos, la Babesia es una infeccion donde son tres parasitos los que al mismo tiempo se meten entre el globulo rojo a comer y vivir!!  Osea es una triple malaria!!!!    Y por su parte la bacteria Borrelia, la base conocida de la infeccion, salta a los globulos blancos, daña el sistema immunologico y viaja entre los globulos blancos por todo el cuerpo para vivir a sus anchas...

De la sangre la infeccion viaja a a la base del cerebro y se mueve por entre el sistema linfatico, - son  todas las glandulas infectadas - uno de los primeros sintomas es el cuello inflamado, dolor en la base del craneo y tiroides; y desde alli se mueve por las venas al resto del cuerpo y desde las glandulas al cerebro, corazon y demas organos.. los sintomas son entonces perdida de memoria, vision borrosa, sintomas neurologicos como incremento o perdida del olfato y el gusto, incremento en la audicion - supe de una mujer quien sufrio tanto por lo del sonido que llego a suicidarse porque los medicos no le ayudaron durante años hasta que enloquecio.. tambien por la infeccion en el cerebro puede haber depresion clinica o unas iras como la demencia en los casos de sifilis o malaria cerebral... siguen luego sintomas como palpitaciones y arritmias, diarreas agudas, dolores artriticos, los musculos se caen, incremento subito o perdida subita de peso, dolores agudos de cabeza, de piernas, todos los nervios infectados dan unos calambres muy fuertes,  o en el riñon o de estomago; estamos hablando artritis y dolores musculares  - aqui les dan opiaceas para el dolor, conozco a una mujer que la tratan con 113 medicinas diarias, entre ellas cuatro opiaceas y morfina.. no, ella no es la mas enferma pero si una adicta... conozco otros casos de personas en cama sin levantarse 4 o 5 años... una joven de 24 años quien no logra permanencer sentada mas de 5 o 10 minutos porque se desmaya, despues de cientos de medicos - su familia tiene los recursos - un medico Ingles le encontro parasitos alojados en el sinus, la garganta y el cerebro...?  El tratamiento aqui es antibiotico intravenoso a razon de $2,500 por semana o por mes si tiene seguro?  osea es el negocio redondo! 

El medico que descubrio que la garrapata transmitia una bacteria, Dr Willy Burgdorfer,  tambien dijo que habian parasitos tipo filariales como los de la elefantiasis en Africa, o tambien llamada “Ceguera del Rio” o "Onchoneriasis"; pero aqui eso lo cubrieron con tierrita porque entonces estariamos hablando de una enfermedad peor que la malaria y la “Onchoneriasis” ?? eso seria la peor imagen en el mundo.  Solo por contarles me toco ver a una amiga con Lyme cuando le salio un bicho por el ojo, pequeñito, y luego empezamos a tomarles fotos y ya tengo un album… quiero decir, es una enfermedad de pelicula de terror que USA esconde!

Mi historia empieza desde el 2006. Pase por diez medicos y todos se pasaban la pelota caliente - aqui en la Florida no hay ni puede haber Lyme Disease, imposible!  Es una enfermedad que en su ciclo envuelve el paso por la rata y el venado - osea... seria como decir que Mickey y Bambi son transmisiores de una enfermedad casi mortal.. o que aqui no la saben curar? .... pero mi historia es comun, la mayoria de los enfermos con Lyme no solo sufren la terrible enfermedad sino el rechazo y la negacion de la mayoria de los medicos; creo que a los Doctores les da miedo enfrentar a un paciente multisintomatico, multiinfectado, o prefieren usar una evasiva y es mas facil decir que tiene menopausia o alergias? ... me costo $650 dolares el examen que decia que NO era menopausia... ombe si me dolio el bolsillo y el ego... entonces gracias al internet encontre el nombre de la enfermedad que tenia, Lyme Disease, y  luego fui a ver especialistas de enfermedades infeccionsas quienes igual lo negaron, "que si tenia alguna infeccion la habia traido de Colombia"? 

y entonces mi Primo me mando antibioticos desde Medellin para ayudarme, pero apenas los paraba me empeoraba;  luego gracias a Dios llame a mi medico de la epoca cuando vivimos en Cali - lo llame porque era un medico que iba a la casa a ver a sus pacientes muy sabio, muy estudioso y muy compasivo - y claro Dr J Q sabia mas de infecciones bacteriales y parasitarias que los medicos de aqui y me empezo a tratar por telefono primero la tiroides, me dio otros antibioticos pero cuando se me acababan yo empeoraba hasta no poderme mover para ir al baño…  luego de muchos meses sin mejorar al Doctor se le ocurrio intentar tratamiento antiparasitario? Aqui las entidades medicas especializadas decian que ni el Bactrim ni el Flagyl servian para tratar esta enfermedad.  Yo empece con Metronidazol y no solo senti mejoria sino que  por primera vez note algo de recuperacion, pero la infeccion aun era brutal.. entonces en el 2009 fui a ver a un medico en Maryland, ya fui capaz de viajar!  Este Doctor con solo verme reconocio varios sintomas como el "Bells Palsy" que es paralisis de un lado de la cara como si hubiera tenido un derrame, y miro mi cuello y la dificultad para tragar y el corazon, etc... me mando examenes de sangre para confirmar su diagnostico clinico: Lyme Disease!   y me dio antibioticos! ... Le rogue me hicieran un examen para ver si tenia parasitos intestinales pero no.. el Dr no trata parasitos... pero si llevo tres años con daño de estomago please...  los examenes mostraron que tenia la famosa bacteria Borrelia, tambien el parasito Babesia y que en mi sangre habian otros dos parasitos que no lograron saber que eran?  uno redondo muy numeroso tipo toxoplasmosis y otro alargado con bolitas en las puntas? ...  osea, para empezar 4 tipos de bichos sin examenes exhaustivos solo los basicos?

Mas me hubiera valido "coger" una malaria cuando me fui a vivir a la selva de Bahia Solano que esta infeccion gringa...

No tenia dinero para regresar a Maryland y el Dr no me iba a tratar por telefono; las inyecciones de penicilina me costaron $1,200 dls, cada 20 pastillas me valian $300 y era una lista interminable de gastos, sin decirles que los medicos especializados cobran $875 por la consulta y si es alguna preguntita telefonica cobran $10 por minuto? .. gracias a Dios mi familia me mando medicinas y aun cada vez que alguien viaja me traen medicinas y con eso me salvaron la vida - Dios les pague!  ... pero que conste que no me estoy quejando ni mas faltaba, solo era para que vieran como es la atencion medica en USA; antes a mi me ha ido super bien porque las personas que conozco con LD se gastan entre 40 y 60 mil dolares en su tratamiento anual y aun siguen muy enfermos o recaen constantemente.. yo no me quejo, por el contrario mi familia me ha enviado tantas medicinas de Colombia que tengo un arsenal repleto;  pero la gran diferencia ha sido ese medico Caleño quien me dio Ivermectina... siii, la medicina que empezo como Ivomec para purgar el ganado?  muuu, me salvo la vida!!!!  No, no es un comercial!!!  Si no hay tratamiento antiparasitario no hay recuperacion en el Lyme Disease, digo yo!

El Dr me mando dosis semanales muy bajitas, combinadas con antibioticos y ahora al escondido de el me tome una medicina para caballos (Zimectrin que ademas tiene prazicuantel) - creo que es la mejor medicina que existe.. no, no me creo llegua, apenas si soy una mula con aspiraciones!!!!!!  Y me he mejorado muchisimo, estoy muy funcional digamos.. con sintomas de corazon y otros porque ademas tantos años de antibioticos al que no matan lo desbaratan como el matrimonio... pero ahi voy bien la mayoria de las veces. 

Y tengo un blog y como 600 amigos de Facebook con la misma enfermedad y les cuento sobre la Ivermectina y hay varios a quienes les he dado mi medicina y todos han mostrado recuperacion - una sra luego de 4 años en cama ya me escribio que fue a comprarle regalo al nieto y fue a mercar el otro dia y tambien fue a visitar a su hermana...

Entonces, respondo, no se si el Lyme Disease se cura o no...  no lo se.   En este momento aqui hay cientos de tratamientos muy costosos, inclusive han hecho los llamados "protocolos patentados" para tratar el Lyme pero nadie habla de curarlo solo de "remision"; muchos hacen tratamientos con medicinas herbales o  maquinas que curan y miles de expertos opinan diariamente...  y obvio que hay una gigantezca problematica politica y social detras de esta enfermedad, como la sifilis o el sida, pero esta no la quieren enfrentar o la quieren usar para enriquecer las farmaceuticas porque afecta a personas de todas las edades, no discrimina en sexo ni raza; causa cientos de sintomas que hacen las riqueza de muchos especialistas y es la enfermedad de siglo porque ya se rego por Europa y Africa... no se si esta en Sur America?  

Tal vez encuentren la cura una vez se convierta en pandemia y vendan su formula magica?  O tal vez el Lyme Disease acabe con la humanidad? Suena como a una enfermedad de Nostradamus "pediran la muerte a gritos"?   y tambien algunos dicen que este es el GU chino que mato a miles ... no se, la bolita de cristal no me funciona bien ultimamente  para saber que va a pasar, se me daño el olfato perdiodistico con tanta infeccion y subjetividad? 

... yo solo se que el presente es lo unico que tenemos y que todo bien!

Antes vivi en una velocidad ultrasonido, cinco minutos para escribir una nota antes que saliera al aire, ahora conoci el lado de los lentos que estorban en la fila... cerrando mi circulo!
Hasta hoy en medio de todo, he aprendido mucho y Soy feliz!!!

Abrazos... no me imagine contar mi historia pero quiza le sirva a alguien... ojala!

Maria J.

LYME DISEASE: SURVIVING TO FLUKES AND PARAGONIMUS!

This is not good news but very needed to open the eyes and properly treat this Lyme, because Borrelia enters the immune system some big bad opportunistic bugs show up and if not treated well, there is no recovery at all... many Lymies have shown to have FLUKES OR PARAGONIMUS... sometimes Praziquantel could help (I found it in Zimectrin Gold for horses and there is a human version in the US); but unfortunately the only medicine that really seems to work for treating flukes is  called TRICLABENDAZOLE, but the human version Fasinex is almost impossible to find anywhere in the world,  so most countries have to treat with the veterinary version.  If the person has flukes or paragonimus could get cancer if not properly treated and even after being treated; most lung problems are from the flukes, most liver problems are from these too and they also could cause intestinal parasitic infection.  Please note these super mega bugs are not being treated with the antibiotics you have been taking, nor the IV abx, nor oral and less herbals; if the person has flukes the medicine has to be as strong and equivalent as the bug.  
This is not bacteria, nor filarial parasites, nor the common spaghetti worms some might have seen in their toilets, these are the masters of disguise, real huge monster demons!  
 The way to test is in stool samples if the lab is looking for them, or if you see your "samples" like if you had eaten black beans... or with some brown seeds like whole almonds... plus the symptoms: Symptoms of parasite infection, specifically fascioliasis "include headaches, rashes, muscle pain, jaundice, abdominal pain, loss of appetite, anemia, nausea, and vomiting".  - And there might be other testing like DNA art testing or the biofeedback machines?  those might save our lives I think if we get a proper dgx.

This is other reading that states that the other anthelmintics could work but it is an older article, I present it here just for information: "Symptoms of schistosomiasis appear in three distinct phases.  In the initial phase, symptoms include:  fever, skin rash, abdominal pain, bronchitis, enlargement of the liver and spleen, and diarrhea.  In the intermediate phase, symptoms include pathological changes in the intestinal and urinary tracts, and eggs in the urine and feces.  The final phase results in complications involving major bodily systems."

"Diagnosis is accomplished by finding eggs in the urine or feces. The most effective drugs for treating schistosomoiasis are organic trivalent antimonials.  However, these drugs are toxic to humans, and of these drugs, only pentavalent stibogluconate is still in use.

The current drug of choice is praziquantel.  Other drugs used to treat schistosomiasis include metrifonate, oxamniquine, bithionol, albendazole, or mebendazole.  The mechanism of these modern drugs is not known.  However, it is known that one of the drugs (albendazole) starves the parasite and its offspring."... NOT TRUE, TRICLABENDAZOLE IS THE CHOICE NOW!

If I may add, I found a veterinary medicine called TRIVENTOR that contains all the anthelmintics such as Triclabendazole, febendazole, Ivermectina and Praziquantel - does not contain Albendazole but I guess it is because the Albenda is the one that most probably hurt the Central Nervous system, but opposite of what we think, Albenda is one of the antiparasitics preffered by the American Doctors because they do not know the other anthelmintics plus they ignore the studies about the central nervous system...

Anyways, I'm talking about monsters, huge, affecting Lyme patients who's bodies and immune system cannot combat by itself!  Hope we all could get tested and treated against FLUKES!.
Read this: 
"Symptoms of schistosomiasis are caused by the body's reaction to the eggs produced by worms, not by the worms themselves.
Digestive symptoms: The following list incomplete:
abdominal pain, nausea, vomiting, inability to pass gas, abdominal pain on breathing, constipation, diarrhea, abdominal sensitivity, abdominal pain near navel, abdominal pain on sneezing, abdominal pain on activity, right-side abdominal pain, abdominal pain on coughing, abdominal swelling, upper abdominal discomfort, abdominal burning, abdominal bloating, malabsorption, partial intestinal blockage, Diverticulosis* Acute kidney failure ... nausea, vomiting, diarrhea * Bowel Obstruction ... green vomit, constipation, fecal vomiting, vomiting, abdominal swelling http://www.earthtym.net/ref-fluke-info.htm"

The study made in Egipt that showed Triclabendazole as the proper medicine to treat for flukes here: 

http://www.emro.who.int/publications/emhj/0402/07.htm

Links of pictures of parasites a wonderful blog, by

Carol Poore, thank you:

http://www.epi-center.com/parasite.html

And more Links and info about triclabendazole,

http://www.drugs.com/mmx/triclabendazole.html

http://parasitology.com/worms/index.html

"[Fascioliasis (treatment)]¹—Triclabendazole is used as a primary agent in the treatment of fascioliasis caused by Fasciola hepatica (sheep liver fluke) and Fasciola gigantica (giant liver fluke). ^{{01} {02} {07} {08} {11} {13}}

[Paragonimiasis (treatment)]¹—Triclabendazole is used as an alternative agent in the treatment of paragonimiasis caused by Paragonimus westermani (lung fluke) ^{01}"
Mechanism of action/Effect:

Fasciolicidal not only against the adult worms present in the biliary ducts, but also against the immature larval stages of Fasciola migrating through the hepatic parenchyma; the mechanism of action is not thoroughly understood; however, triclabendazole is shown to penetrate into liver flukes by transtegumentary absorption followed by inhibition of the parasite's motility, probably related to the destruction of the microtubular structure, resulting in the death of the parasite; the immobilizing effect is paralleled by changes in the parasite's resting tegumental membrane potential, strongly inhibiting the release of proteolytic enzymes, a process that appears critical to the survival of the parasite ^{{05} {06} {07}}.
 Absorption:
Following oral administration, triclabendazole is absorbed from the gastrointestinal tract; absorption is increased twofold to threefold when triclabendazole is taken after a fatty meal ^{{02} {08}}. Distribution:
Triclabendazole and its metabolites attain high concentrations in the biliary tract, through which they are excreted back into the intestine over a period of several days ^{02}; less than 1% of orally administered triclabendazole is distributed into breast milk ^{09}. Biotransformation:
Triclabendazole is oxidized to sulfoxide (the primary metabolite) and sulfone (present in lesser amounts) over the first 24 hours following oral administration ^{02}.
 Time to peak concentration:
Approximately 8 hours ^{02}.
 Elimination:
    Fecal—Approximately 95% of orally administered triclabendazole (unchanged or as the primary metabolite) is excreted in the feces ^{09}.      Renal—Approximately 2% is excreted in the urine ^{09}. Precautions to Consider
Mutagenicity Studies conducted in laboratory animals have not shown triclabendazole to be mutagenic ^{{07} {08}}"

BUT THE ONLY POSSIBLE TRICLABENDAZOLE IS VETERINARY THE HUMAN VERSION IS STILL IN LIMBO LAND!   FASINEX IS IMPOSIBLE TO BUY, SO NADA, THERE IS NON HUMAN MED TO TREAT FOR FLUKES, NO EXISTE!
Only vet med and it is considered illegal in the US? ... :(
 

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS. Just sharing my thoughts, research and experience!