8/05/2011

LYME DISEASE: LA ENFERMEDAD DE LA GARRAPATA, TIENE CURA?

Mi amiga periodista me pregunta como sobrevivo a la enfermedad de la garrapata y si tiene cura?
(Nota: vivo en Florida y se supone que aqui no decimos "bicho" porque los puertorriqueños se ofenden pues  lo consideran una mala palabra que significa el organo masculino? pero para nosotros solo quiere decir animal pequeño o hasta microorganismo, asi es que perdonenme el uso de esa palabra en este mensaje).

Entonces LYME DISEASE - La Enfermedad de la Garrapata tiene o no cura?  Esta es mi historia y mi opinion:

Mi caso es severo como el de muchos aqui y este pais lo niega pues no quieren que se sepa que tienen una enfermedad tipo malaria - peor; si compararamos el parasito de la malaria se mete entre el globulo rojo para vivir alli, luego va al higado y luego al cerebro y termina matando a su huesped.  En la enfermedad gringa la picadura es de un garrapatica muy pequeña que no solo transmite una bacteria sino varios tipos de bichos entre bacterias y parasitos y aun no se sabe cuales son todos, solo se le ha dado nombre a algunos y curiosamente no matan al huesped sino solo luego de muchos años largos de sufrimiento... - hay quienes dicen que la garrapatita fue creada como parte de la guerra biologica y se les escapo de su centro de investigaciones de Plum Island?  En todo caso por comparar solo uno de ellos, la Babesia es una infeccion donde son tres parasitos los que al mismo tiempo se meten entre el globulo rojo a comer y vivir!!  Osea es una triple malaria!!!!    Y por su parte la bacteria Borrelia, la base conocida de la infeccion, salta a los globulos blancos, daña el sistema immunologico y viaja entre los globulos blancos por todo el cuerpo para vivir a sus anchas...


De la sangre la infeccion viaja a a la base del cerebro y se mueve por entre el sistema linfatico, - son  todas las glandulas infectadas - uno de los primeros sintomas es el cuello inflamado, dolor en la base del craneo y tiroides; y desde alli se mueve por las venas al resto del cuerpo y desde las glandulas al cerebro, corazon y demas organos.. los sintomas son entonces perdida de memoria, vision borrosa, sintomas neurologicos como incremento o perdida del olfato y el gusto, incremento en la audicion - supe de una mujer quien sufrio tanto por lo del sonido que llego a suicidarse porque los medicos no le ayudaron durante años hasta que enloquecio.. tambien por la infeccion en el cerebro puede haber depresion clinica o unas iras como la demencia en los casos de sifilis o malaria cerebral... siguen luego sintomas como palpitaciones y arritmias, diarreas agudas, dolores artriticos, los musculos se caen, incremento subito o perdida subita de peso, dolores agudos de cabeza, de piernas, todos los nervios infectados dan unos calambres muy fuertes,  o en el riñon o de estomago; estamos hablando artritis y dolores musculares  - aqui les dan opiaceas para el dolor, conozco a una mujer que la tratan con 113 medicinas diarias, entre ellas cuatro opiaceas y morfina.. no, ella no es la mas enferma pero si una adicta... conozco otros casos de personas en cama sin levantarse 4 o 5 años... una joven de 24 años quien no logra permanencer sentada mas de 5 o 10 minutos porque se desmaya, despues de cientos de medicos - su familia tiene los recursos - un medico Ingles le encontro parasitos alojados en el sinus, la garganta y el cerebro...?  El tratamiento aqui es antibiotico intravenoso a razon de $2,500 por semana o por mes si tiene seguro?  osea es el negocio redondo! 
El medico que descubrio que la garrapata transmitia una bacteria, Dr Willy Burgdorfer,  tambien dijo que habian parasitos tipo filariales como los de la elefantiasis en Africa, o tambien llamada “Ceguera del Rio” o "Onchoneriasis"; pero aqui eso lo cubrieron con tierrita porque entonces estariamos hablando de una enfermedad peor que la malaria y la “Onchoneriasis” ?? eso seria la peor imagen en el mundo.  Solo por contarles me toco ver a una amiga con Lyme cuando le salio un bicho por el ojo, pequeñito, y luego empezamos a tomarles fotos y ya tengo un album… quiero decir, es una enfermedad de pelicula de terror que USA esconde!
Mi historia empieza desde el 2006. Pase por diez medicos y todos se pasaban la pelota caliente - aqui en la Florida no hay ni puede haber Lyme Disease, imposible!  Es una enfermedad que en su ciclo envuelve el paso por la rata y el venado - osea... seria como decir que Mickey y Bambi son transmisiores de una enfermedad casi mortal.. o que aqui no la saben curar? .... pero mi historia es comun, la mayoria de los enfermos con Lyme no solo sufren la terrible enfermedad sino el rechazo y la negacion de la mayoria de los medicos; creo que a los Doctores les da miedo enfrentar a un paciente multisintomatico, multiinfectado, o prefieren usar una evasiva y es mas facil decir que tiene menopausia o alergias? ... me costo $650 dolares el examen que decia que NO era menopausia... ombe si me dolio el bolsillo y el ego... entonces gracias al internet encontre el nombre de la enfermedad que tenia, Lyme Disease, y  luego fui a ver especialistas de enfermedades infeccionsas quienes igual lo negaron, "que si tenia alguna infeccion la habia traido de Colombia"? 
y entonces mi Primo me mando antibioticos desde Medellin para ayudarme, pero apenas los paraba me empeoraba;  luego gracias a Dios llame a mi medico de la epoca cuando vivimos en Cali - lo llame porque era un medico que iba a la casa a ver a sus pacientes muy sabio, muy estudioso y muy compasivo - y claro Dr J Q sabia mas de infecciones bacteriales y parasitarias que los medicos de aqui y me empezo a tratar por telefono primero la tiroides, me dio otros antibioticos pero cuando se me acababan yo empeoraba hasta no poderme mover para ir al baño…  luego de muchos meses sin mejorar al Doctor se le ocurrio intentar tratamiento antiparasitario? Aqui las entidades medicas especializadas decian que ni el Bactrim ni el Flagyl servian para tratar esta enfermedad.  Yo empece con Metronidazol y no solo senti mejoria sino que  por primera vez note algo de recuperacion, pero la infeccion aun era brutal.. entonces en el 2009 fui a ver a un medico en Maryland, ya fui capaz de viajar!  Este Doctor con solo verme reconocio varios sintomas como el "Bells Palsy" que es paralisis de un lado de la cara como si hubiera tenido un derrame, y miro mi cuello y la dificultad para tragar y el corazon, etc... me mando examenes de sangre para confirmar su diagnostico clinico: Lyme Disease!   y me dio antibioticos! ... Le rogue me hicieran un examen para ver si tenia parasitos intestinales pero no.. el Dr no trata parasitos... pero si llevo tres años con daño de estomago please...  los examenes mostraron que tenia la famosa bacteria Borrelia, tambien el parasito Babesia y que en mi sangre habian otros dos parasitos que no lograron saber que eran?  uno redondo muy numeroso tipo toxoplasmosis y otro alargado con bolitas en las puntas? ...  osea, para empezar 4 tipos de bichos sin examenes exhaustivos solo los basicos?



Mas me hubiera valido "coger" una malaria cuando me fui a vivir a la selva de Bahia Solano que esta infeccion gringa...

No tenia dinero para regresar a Maryland y el Dr no me iba a tratar por telefono; las inyecciones de penicilina me costaron $1,200 dls, cada 20 pastillas me valian $300 y era una lista interminable de gastos, sin decirles que los medicos especializados cobran $875 por la consulta y si es alguna preguntita telefonica cobran $10 por minuto? .. gracias a Dios mi familia me mando medicinas y aun cada vez que alguien viaja me traen medicinas y con eso me salvaron la vida - Dios les pague!  ... pero que conste que no me estoy quejando ni mas faltaba, solo era para que vieran como es la atencion medica en USA; antes a mi me ha ido super bien porque las personas que conozco con LD se gastan entre 40 y 60 mil dolares en su tratamiento anual y aun siguen muy enfermos o recaen constantemente.. yo no me quejo, por el contrario mi familia me ha enviado tantas medicinas de Colombia que tengo un arsenal repleto;  pero la gran diferencia ha sido ese medico Caleño quien me dio Ivermectina... siii, la medicina que empezo como Ivomec para purgar el ganado?  muuu, me salvo la vida!!!!  No, no es un comercial!!!  Si no hay tratamiento antiparasitario no hay recuperacion en el Lyme Disease, digo yo!
El Dr me mando dosis semanales muy bajitas, combinadas con antibioticos y ahora al escondido de el me tome una medicina para caballos (Zimectrin que ademas tiene prazicuantel) - creo que es la mejor medicina que existe.. no, no me creo llegua, apenas si soy una mula con aspiraciones!!!!!!  Y me he mejorado muchisimo, estoy muy funcional digamos.. con sintomas de corazon y otros porque ademas tantos años de antibioticos al que no matan lo desbaratan como el matrimonio... pero ahi voy bien la mayoria de las veces. 

Y tengo un blog y como 600 amigos de Facebook con la misma enfermedad y les cuento sobre la Ivermectina y hay varios a quienes les he dado mi medicina y todos han mostrado recuperacion - una sra luego de 4 años en cama ya me escribio que fue a comprarle regalo al nieto y fue a mercar el otro dia y tambien fue a visitar a su hermana...

Entonces, respondo, no se si el Lyme Disease se cura o no...  no lo se.   En este momento aqui hay cientos de tratamientos muy costosos, inclusive han hecho los llamados "protocolos patentados" para tratar el Lyme pero nadie habla de curarlo solo de "remision"; muchos hacen tratamientos con medicinas herbales o  maquinas que curan y miles de expertos opinan diariamente...  y obvio que hay una gigantezca problematica politica y social detras de esta enfermedad, como la sifilis o el sida, pero esta no la quieren enfrentar o la quieren usar para enriquecer las farmaceuticas porque afecta a personas de todas las edades, no discrimina en sexo ni raza; causa cientos de sintomas que hacen las riqueza de muchos especialistas y es la enfermedad de siglo porque ya se rego por Europa y Africa... no se si esta en Sur America?  

Tal vez encuentren la cura una vez se convierta en pandemia y vendan su formula magica?  O tal vez el Lyme Disease acabe con la humanidad? Suena como a una enfermedad de Nostradamus "pediran la muerte a gritos"?   y tambien algunos dicen que este es el GU chino que mato a miles ... no se, la bolita de cristal no me funciona bien ultimamente  para saber que va a pasar, se me daño el olfato perdiodistico con tanta infeccion y subjetividad? 
... yo solo se que el presente es lo unico que tenemos y que todo bien!

Antes vivi en una velocidad ultrasonido, cinco minutos para escribir una nota antes que saliera al aire, ahora conoci el lado de los lentos que estorban en la fila... cerrando mi circulo!
Hasta hoy en medio de todo, he aprendido mucho y Soy feliz!!!

Abrazos... no me imagine contar mi historia pero quiza le sirva a alguien... ojala!

Maria J.

8/02/2011

LYME DISEASE: SURVIVING TO FLUKES AND PARAGONIMUS!

This is not good news but very needed to open the eyes and properly treat this Lyme, because Borrelia enters the immune system some big bad opportunistic bugs show up and if not treated well, there is no recovery at all... many Lymies have shown to have FLUKES OR PARAGONIMUS... sometimes Praziquantel could help (I found it in Zimectrin Gold for horses and there is a human version in the US); but unfortunately the only medicine that really seems to work for treating flukes is  called TRICLABENDAZOLE, but the human version Fasinex is almost impossible to find anywhere in the world,  so most countries have to treat with the veterinary version.  If the person has flukes or paragonimus could get cancer if not properly treated and even after being treated; most lung problems are from the flukes, most liver problems are from these too and they also could cause intestinal parasitic infection.  Please note these super mega bugs are not being treated with the antibiotics you have been taking, nor the IV abx, nor oral and less herbals; if the person has flukes the medicine has to be as strong and equivalent as the bug.  
This is not bacteria, nor filarial parasites, nor the common spaghetti worms some might have seen in their toilets, these are the masters of disguise, real huge monster demons!  
 The way to test is in stool samples if the lab is looking for them, or if you see your "samples" like if you had eaten black beans... or with some brown seeds like whole almonds... plus the symptoms: Symptoms of parasite infection, specifically fascioliasis "include headaches, rashes, muscle pain, jaundice, abdominal pain, loss of appetite, anemia, nausea, and vomiting".  - And there might be other testing like DNA art testing or the biofeedback machines?  those might save our lives I think if we get a proper dgx.
This is other reading that states that the other anthelmintics could work but it is an older article, I present it here just for information: "Symptoms of schistosomiasis appear in three distinct phases.  In the initial phase, symptoms include:  fever, skin rash, abdominal pain, bronchitis, enlargement of the liver and spleen, and diarrhea.  In the intermediate phase, symptoms include pathological changes in the intestinal and urinary tracts, and eggs in the urine and feces.  The final phase results in complications involving major bodily systems."
"Diagnosis is accomplished by finding eggs in the urine or feces. The most effective drugs for treating schistosomoiasis are organic trivalent antimonials.  However, these drugs are toxic to humans, and of these drugs, only pentavalent stibogluconate is still in use.
The current drug of choice is praziquantel.  Other drugs used to treat schistosomiasis include metrifonate, oxamniquine, bithionol, albendazole, or mebendazole.  The mechanism of these modern drugs is not known.  However, it is known that one of the drugs (albendazole) starves the parasite and its offspring."... NOT TRUE, TRICLABENDAZOLE IS THE CHOICE NOW!
If I may add, I found a veterinary medicine called TRIVENTOR that contains all the anthelmintics such as Triclabendazole, febendazole, Ivermectina and Praziquantel - does not contain Albendazole but I guess it is because the Albenda is the one that most probably hurt the Central Nervous system, but opposite of what we think, Albenda is one of the antiparasitics preffered by the American Doctors because they do not know the other anthelmintics plus they ignore the studies about the central nervous system...
Anyways, I'm talking about monsters, huge, affecting Lyme patients who's bodies and immune system cannot combat by itself!  Hope we all could get tested and treated against FLUKES!.
Read this: 
"Symptoms of schistosomiasis are caused by the body's reaction to the eggs produced by worms, not by the worms themselves.
Digestive symptoms: The following list incomplete:
abdominal pain, nausea, vomiting, inability to pass gas, abdominal pain on breathing, constipation, diarrhea, abdominal sensitivity, abdominal pain near navel, abdominal pain on sneezing, abdominal pain on activity, right-side abdominal pain, abdominal pain on coughing, abdominal swelling, upper abdominal discomfort, abdominal burning, abdominal bloating, malabsorption, partial intestinal blockage, Diverticulosis* Acute kidney failure ... nausea, vomiting, diarrhea * Bowel Obstruction ... green vomit, constipation, fecal vomiting, vomiting, abdominal swelling http://www.earthtym.net/ref-fluke-info.htm"


The study made in Egipt that showed Triclabendazole as the proper medicine to treat for flukes here: 
Links of pictures of parasites a wonderful blog, by
Carol Poore, thank you:

And more Links and info about triclabendazole,

"[Fascioliasis (treatment)]1Triclabendazole is used as a primary agent in the treatment of fascioliasis caused by Fasciola hepatica (sheep liver fluke) and Fasciola gigantica (giant liver fluke). {01} {02} {07} {08} {11} {13}

[Paragonimiasis (treatment)]1—Triclabendazole is used as an alternative agent in the treatment of paragonimiasis caused by Paragonimus westermani (lung fluke) {01}"

Mechanism of action/Effect:

Fasciolicidal not only against the adult worms present in the biliary ducts, but also against the immature larval stages of Fasciola migrating through the hepatic parenchyma; the mechanism of action is not thoroughly understood; however, triclabendazole is shown to penetrate into liver flukes by transtegumentary absorption followed by inhibition of the parasite's motility, probably related to the destruction of the microtubular structure, resulting in the death of the parasite; the immobilizing effect is paralleled by changes in the parasite's resting tegumental membrane potential, strongly inhibiting the release of proteolytic enzymes, a process that appears critical to the survival of the parasite {05} {06} {07}.

 Absorption:
Following oral administration, triclabendazole is absorbed from the gastrointestinal tract; absorption is increased twofold to threefold when triclabendazole is taken after a fatty meal {02} {08}. Distribution:
Triclabendazole and its metabolites attain high concentrations in the biliary tract, through which they are excreted back into the intestine over a period of several days {02}; less than 1% of orally administered triclabendazole is distributed into breast milk {09}. Biotransformation:
Triclabendazole is oxidized to sulfoxide (the primary metabolite) and sulfone (present in lesser amounts) over the first 24 hours following oral administration {02}.

 Time to peak concentration:
Approximately 8 hours {02}.

 Elimination:
    Fecal—Approximately 95% of orally administered triclabendazole (unchanged or as the primary metabolite) is excreted in the feces {09}.      Renal—Approximately 2% is excreted in the urine {09}. Precautions to Consider
Mutagenicity Studies conducted in laboratory animals have not shown triclabendazole to be mutagenic {07} {08}"


BUT THE ONLY POSSIBLE TRICLABENDAZOLE IS VETERINARY THE HUMAN VERSION IS STILL IN LIMBO LAND!   FASINEX IS IMPOSIBLE TO BUY, SO NADA, THERE IS NON HUMAN MED TO TREAT FOR FLUKES, NO EXISTE!
Only vet med and it is considered illegal in the US? ... :(
 

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS. Just sharing my thoughts, research and experience!
 

7/28/2011

Why we need to use Ivermectin or other antiparasitics for treating lyme Disease?

My friend Thane Fredrickson-Lyme asked me:
"Hey Maria, can you briefly tell me your theory of why we need to use Ivermectin or other antiparasitics for treating lyme?"
Here is my answer, I'm doing a document so it can help others.

Thank you for saying MY THEORY, because I don't have the scientific way to prove it, I'm just a lymie!  Most of what I say is learned from my Dr in Colombia who I call and has taught me and helped me through this nightmare - ten Drs here in Fl dismissed me and I was dgx and tested in Maryland with Lyme Borreliosis, Babesia, and two more bugs in my blood by Dr J.

I have written a couple of blogs showing that Lyme Disease is basically a parasitic infection, not a bacterial alone.For me the bacteria in Lyme comes after the parasitic infection.
If it is parasitic needs anthelmintics and my doc thinks the treatment should not be antimalarials because those act by immune suppression so they are not helpful when talking about multiple infections, like killing the cat leaving the rats take over?

So why is Lyme parasitic?
1. It is a zoonotic infection - read CDC, all zoonotic
infections are parasitic; so why we hear lyme is bacterial and the parasitic side was erased?  zoonotic=parasitic = all but Lyme? weird!
2.  Borrelia goes intracellular - if this doesn't mean parasitic what it means?  and Borrelia doesn't die with abx, lol, of course if it is a parasite behavior it needs the medicine for it!
3. Dr Burgdorferi talked about filarial infection and other of the infections transmitted by the tick simultaneously with the Borrelia, but that was ignored?  US didn't want to hear there is a parasitic infection passed by the tick? why? because it is like a malaria?
filarial like as the worse parasitic infection in Africa?  Well Dr Sapi after so many studies decided to not ignore those words and recently stated that if there is a filarial infection in Lyme as Dr Burgdorferi said, this could be the reason why some patients never recover with conventional treatments and would requires "strong antifilarial treatments. The drug of choice in Europe is Ivermectin" - her words almost literal.  She said she suspect a filarial infection similar to the onchoneriasis or River blindness of Africa but not the same one - we don't get elephantiasis, but yes we can have bugs coming out the eyes, and in the brain and out from the skin.
"Can species other than bacteria, virus or fungus be responsible for these chronic problems found in Lyme patients?  It has been proposed that certain parasites could also be a factor in Lyme disease.  European doctors have already incorporated Ivermectin, an antihelminth drug, into their Lyme disease protocol with surprising success. Ivermectin is well known for its effectiveness against filarial nematode infections and is often used by veterinarians to eradicate parasitic infections ... Can Lyme disease patients have filarial nematode co-infection and can they acquire this infection from ticks?  The only evidence reported of filarial worm presence in ticks was from a study by Burgdorferi’ in 1984 where thirty microfilarial worms (species not identified) were found in one adult Ixodis dammini tick in Shelter Island, NY. (4) Black flies have already been identified as vectors of filarial nematodes.  Interestingly, ticks can also be used as an in vitro experimental vector system to study the transmission of filarial nematodes and it was shown that the infected nymphal stage could transmit the filarial worms.  If filarial nematodes could be a tick-borne co-infection of Lyme disease patients, their eradication would require additional treatments using specific filaricidal drugs, which could explain why standard antibiotic based protocols often fail in some chronic Lyme disease cases."

 
4.  Babesia is not enough to consider? LD patients with Babesia are given antibiotics to treat them, like if the Babesia could be treated with antibiotics?  it is like trying to kill a snake with flea spray?  yes the spay has killed tons of fleas but the snake is not going to die until you pour this flea sprays for years and tons of it right?  Babesia is a malaria kind of parasite and malaria is been treated with Ivermectin in South America  and Africa with outstanding results for about 20 years? So if the Drs here didn't give me any treatment for Babesia I had to dare to try to help my self and the human Ivermectin I took initially showed me I could recover, so I kept treating my self with a low dose, once a week and because of the recovery I have had much different and significance compared to when I was treated with antibiotics alone, I start posting about Ivermectin as a vital part to help and treat Lyme Disease patients.  And I didn't know about the filarial infection yet; now more than ever I am convinced that the first drug of choice has to be Ivermectin.
Tons of research in Norway and even here in the US have shown Lyme Disease cannot be treated with antibiotics alone, and the studies that have been made with potent herbs like Samento, banderol, Cat's claw always end up using an anthelmintic to kill the remaining parasites.
5. Flukes:  as my Dr states lots of opportunistic show up when there are huge poly-infections but what if flukes are the ones causing the majority of the damage?  I have seen that most of my Lymie friends end up having Flukes or in the lungs, or the liver or the intestines... these huge parasites cannot be ignored at all.  I have been taking Praziquantel combined with Ivermectin and felt the best in 6 years of nightmare.  The medicine I got is called Zimectrin Gold and it is veterinary.  I also got a horse medicine called Triclabendazole, very difficult to find in the world, to treat the flukes in case the Praziquantel is not enough; if flukes are not treated people get cancer... or people with cancer have them...
6.  Parasites in the intestines, with Lyme for sure, the opportunistic are there and with a compromised immune system they are reproducing every full moon and require to be treated.  Yes Ivermectin is good for this!  But note, when I talk about parasites in Lyme these are the least ones I'm talking about, the chain is much bigger than just having parasites in the intestines; these are just the obvious result or product from such multiple infection.

And there is so much more research that shows Lyme Disease is by all means a multi-infection of parasites and bacteria that has to be properly treated: first the big ones then the small ones.  It is the logic way to do it.  My Dr said, you kill the master and the others in the chain or go with him or will be easier to defeat with other medicines or even your own immune system could fight them.  The Drs in the US chose the other way around, first antibiotics and even IV antibiotics for three years and then some might give Flagyl, or other use antimalarials like Mepron or Malarone or Artemisinin... an approach that has shown no complete recovery and barely a so called remission in some patients.

I'm talking recovery as being healthy, strong and able to live a normal life.  My heart is hurt and my liver and stomach too after so many years of antibiotics, full of fungus and other toxins but I can tell you my muscles are coming back after the Ivermectin treatments, like if I am going to a gym or having any kind of workout which not only I have not had nor any kind of food or shakes for this, but I am almost 50 years old, sick sedentary 6 years and this never seem to be even possible after all my muscles fall off from my bones in 2006 when Lyme started...  I believe there could be recovery from LD with Ivermectin and proper antiparasitic treatment! Note: if you are lucky enough to have a good Chinese Doctor to treat you for your GU symptoms you won’t need my advice or Ivermectin!

Hope my info helps.  Will post it and do another blog hoping I can reach Lymies and they can recover slowly as I have had this God given gift too!

Hugs 

Maria.