Some were wondering if I got cured from Lyme Disease, or if I was sicker, because I was not posting anything here. I can say I stopped writing this blog because I dedicated to my group called Florida Lyme League and was bringing all the research to them and to my wall in Facebook, so now I'm back and hopefully soon I will start a new blog with videos that I think are going to be very teaching helpful for all.
I have learned a lot about Lyme and Chronic diseases but I guess I have learned much more about human nature and also about my body and about what to do when I'm not feeling well.So I'm not writing this blog today about Lyme or the human nature but about what to do when you feel this sick and are so desperate and cannot find answers in the Doctors or the internet nor your closer people can help you? I say pray with what ever words you have and what ever faith you have, and ask for personal knowledge and then, with no doubt FOLLOW YOUR GUT! It doesn't fail! I'll give you some examples.
My friend was told to drink a lot of water, to detox, so she calls me and tells me that every time she drank a lot of water she got swollen and got terrible pains all over, I just asked her, so what do you think you should do? She said I cannot have all that water, it is not helping me... see? She had the answer to her problem. Then the point was to find the cause why she is retaining liquids and getting swollen? Maybe the gallbladder is blocked and the Lymphatic system is not running properly? Maybe the kidney is producing more water or not processing it properly? Maybe your adrenals are in fear mode, and they're telling the kidney to fill everything with water to "clean the mess"? Maybe it is a allergy with mold and the body is trying to wash it out..? I can go long with this reasoning and probably I still be missing the cause - which of course in a person with Lyme the base cause is probably a pathogenic - a "bugs cause"; but what I try to say here is that if we follow our guts we might know, first hand, what to do and then we can try to find the cause to fix the problem from the base.
More over, we could stop our selves from more symptoms for example, headaches. I start looking when I got them and then trying to find why? so I noticed that every time I eat dessert I got a terrible headache and worse I got so moody and I could even become very angry... so, no need to get a lab test to tell me I am having sugar problems, Nor i needed a Doctor to tell me I needed to make an effort and stop it from my diet. Same thing with the gluten. I don't have a Dr telling me I have to be in a "gluten free diet", I found it by stopping all gluten for two weeks and seeing that my body swelling started to come down... while my friends who have a Dr telling them to do the restriction they have gluten "every now and then" thinking the Dr won't notice it.. :) Same with sugars and even alcohol... My friend from the Group has chocolates and peanut butter almost every day regardless of her Doctor's recommendations. One day she showed me her back full of blisters filled of infection, I asked her if this could be her liver or a result of eating fats or chocolates? And she immediately responded very defensive that she was never going to quit the chocolate "because it is the only thing I have left"... I wonder if life and health is not the ultimate "thing" we should keep?
So this means that if you follow your gut and you really want to recover you are going to have to do changes with a strong personal will over what ever anyone tells you to do or not. It is like quitting a vice "cold turkey". It is a personal way and there is no other way to do it!
When following my gut I found my swelling comes from bacteria/parasitic infection, that clogged my blood, my gut, my gallbladder and liver and the glands of my body. With this I have to see what to do to help the body to recover. Diet is one, exercise could be other option but my body seems to not be able to take it yet, so I started with something "easier" like trying to be able to sweat! I had the neurological Lyme that affected the part of the brain that won't let me sweat nor recover the heat - sympathetic / parasympathetic functions were diminished - but after treatments with some oral antibiotics and Ivermectin - antiparasitics- and the very blessed "Double helix water" I found I started to sweat, a little - so I searched for a infrared sauna until found one suited to my small pocket and I think I have now recovered my ability to sweat and with this I started to detox and liberate my body from swelling and toxins.
See? little remedies and small changes can make a huge impact in our health. But our body will always tell if the medicine, the treatment, the remedy or the change is good or not, and even before having any treatment our gut is telling us what is needed to help our selves.
With this I would like to make a side note about what we call "HERXING". We have learned that when we treat for Lyme Disease the body reaction is so strong we feel much sicker, sounds to be obvious after having so much infection spread all over; but I have learned some Lymies and even Doctors only guide their treatment to when they feel the sicker thinking they are having a huge herx, meaning a great response of their bodies., but I confess I've done quite the opposite... I learned from the Dr writer of the blog LYMEMD, from my Colombian Doctor and from Integrative Doctors such as Dr Lee Cowden, that suffering doesn't mean we are healing, it could be a misconception and guide us in a wrong way. Dr J states that if you don't start to feel any better after two weeks of treatment you better start thinking what to do next. Dr Cowden has a protocol, herbal, that includes Burbur and other medicines that will help to deal with the strongest herxings, without this being a cover up of what is going on with the disease. My Col Dr used the "old logic": if it doesn't help you feel better what for you treat"? and he taught me to always keep checking the reactions of my body, after every med taken, after every food, and every remedy. I found that when I took my once a week dose of Ivermectin, the antiparasitic so feared int he US but so used in South America and Africa, not only I had a mild herx the first two days but then I start having a couple of hours a day feeling a bit better. Some without Lyme won't understand what is to have a "couple of good hours" but for us who suffer this disease we know this is priceless. So after this I decided I will look more for "good herxing" than feeling sicker. I can take an antibiotic and can tell exactly when it is kicking in, what is it doing and after a couple of days I can tell if it is working to my recovery or not. Doesn't mean I change treatments every day, by the contrary, I stick with the ones that have really helped me and this has been what has kept me alive and living a decent life during all these years of nightmare.
Follow your gut is believing that your body is telling you what is the problem and what it needs. Help your self studying, reading, watching videos and doing all it takes to find answers and responses to your needs. Do not stay with thinking you are sick and one week of antibiotics is all you can have, it is a lie orchestrated to save money of the insurances that don't want to pay for longer treatment. Do not stay still without looking for other treatments out of the box, like a simple adding bicarbonate to your water or taking castor oil to detox your colon - or a colonic or a coffee enema -. You have the strength to recover, count on it!
BLESSINGS!
NOTE: LYME THE ROLLERCOASTER BLOG DOES NOT OFFER, DOESN'T GIVES, NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.
2/25/2013
11/16/2011
LYME DISEASE, DO NOT TAKE ANTIMALARIALS!
Will start to share here the dialogs I have in my Facebook page with my Lymie friends. I have more than 800 friends with Lyme Disease in the US and the world; and 400 in Florida; yes Lyme Disease is real! Note: will not show the names of my friends unless they give me permission to do it.
en.wikipedia.org
Anthelmintics or antihelminthics are drugs that expel parasitic worms (helminths) from the body, by either stunning or killing them. They may also be called vermifuges (stunning) or vermicides (killing)
10/26/2011
LYME DISEASE, AYUDA A LA ORGANIZACION MUNDIAL DE LA SALUD!
Si no son ustedes, entonces ahora quien podra ayudarnos?
Como tengo Lyme Disease, Babesia, Bartonella y otras co-infecciones le escribi pidiendo ayuda a unos medicos muy especializados de mi pais Colombia, eminencias en enfermedades infecciosas, parasitarias y enfermedades Tropicales, pero me respondieron diciendo que era raro tener varias infecciones al mismo tiempo que la Borreliosis transmitida por la picadura de la garrapata. Esto lo dicen basados en sus libros, con el debido respeto, polvorientos y desactualizados porque la realidad que vive el planeta es otra bien diferente y dura, por lo cual apelo a todos quienes puedan aportar de una u otra manera y a la OMS -WHO por sus siglas en ingles- a que nos ayuden a encontrar tratamientos oportunos y adecuados. Esta es mi carta de respuesta y de pedido de ayuda a los medicos y cientificos quienes quisieran reconsiderar sus conocimientos sobre el Lyme Disease:
Lastimosamente no soy ni la primera ni la ultima en tener mas de una co-infeccion sumada a la Borrelia, por el contrario al parecer solo los Europeos parecen ser quienes no tienen tales co-infecciones. Peor aun aqui en USA la lista de co-infecciones como resultado de la picadura de la garrapata parecen ser interminables en un mismo individuo, nombres como Babesia, Bartonella, Mycoplasma, tularemia, Erlichia, Rickettsia, infecciones filariales tipo Ceguera del Rio, tipo toxoplasmosis y muchas otras son nuestro dia a dia. No soy la excepcion. Ver cuadro:
Y una frase sobre co-infecciones del Dr Klinghardt quien tiene mucho exito tratando el Lyme aqui en USA:
"It is our experience that most Lyme patients, by the time the infection has become chronic, have multiple parasites in their bowel. Co-infections from the herpes virus family, Coxsackie's viruses, influenza viruses, echo viruses and the measles virus seem to be common. Frequently they also have one of several mycoplasma species present and a multitude of other bacterial infections. Fungi always thrive in a Lyme-infected patient. The treatment therefore needs to be broad based and address all these co-infections in order to succeed. Treatment for Lyme disease is often unsuccessful when it targets only the Lyme spirochete but not the existing co-infections."
Osea, esto no es un invento mio!
Por eso les escribi, porque ustedes pueden conocer estas infecciones mas que los medicos de aqui y pueden saber tratarlas.
solo por confirmar lo que digo copio aqui una frase del blog del Dr J., quien fue quien el medico quien me diagnostico en
el 2009: "A large percent of patient have the BBB triad: Borrelia, Bartonella, Babesia." Osea la mayoria minimo tenemos la triada BBB, ademas que ya encontraron Mycoplasma y filarial como una constante: Esto lo dijo en el Doctor en el 2010, aqui su blog completo:
Ya esto es reconocido por muchos medicos en USA y como les dije es el dia a dia de nosotros los pacientes,
quienes tenemos que sobrevivir a las muchas co-infeccines; no son casos aislados ni raros, es lo "comun". Hay muchisima literatura medica al respecto que bien les puedo enviar si les interesara. Es tanto asi que se habla de una "arma biologica" por la multiplicidad de infecciones bacteriales, parasitarias, viruses y hasta hongos todas al mismo tiempo; es decir, los libros tradicionales medicos sobre Lyme Disease estan desactualizados y desinformando a los mismos medicos. Repito por eso estoy buscando ayuda de personas mas expertas en infecciones y que puedan considerar la importancia y gravedad del asunto. No por mi o para curarme a mi, solo por sembrarles la semilla de la duda de lo que se avecina o que ya llego.
3. Las investigaciones de la Doctora Eva Sapi, aqui en USA; y las investigaciones de los primos Boronson en Noruega han mostrado resultados altamente positivos para eradicar la Borrelia con Tinidazol o Tindamax, y han hecho estudios con Flagyl y otros; esto porque la Borrelia toma muchas formas y no es posible de controlarla solo con antibioticos como se decia anteriormente; se habla de quistes, de biofilms y de muchas formas que toma la bacteria para evadir los ataques y por ello se investigan tratamientos diferentes, entre ellos se ha hecho mucho enfasis en el uso de antimalaricos como la hierba Artemisia o la llaman Artemisinin tambien. La Dra Sapi ha retomado los estudios del Dr Burgdorferi -descubridor de la Borrelia en los ticks- y encontro que las garrapatas estas tienen no solo la bacteria Borrelia, sino Mycoplasma y unos protozoarios filariales; dice ella que de ser confirmados requeririan tratamientos antifilariales, palabras textuales. En mi experiencia la Ivermectina me salvo la vida, pero imagino mi experiencia no dice mas que lo que digan los libros o los cientificos. Aqui copio un enlace del video de la Dr Sapi cuando habla de sus hallazgos:
Y este es un enlace otra vez del Dr J cuando habla de tratamientos con Tindamax o Tinidazol para mostrarles que los antiparasitarios son casi que obligatorios ya para tratar el Lyme: - les cuento que cuando yo hable con el personalmente sobre Flagyl, Bactrim o antiparasiticos este Doctor casi se me rie en la cara, me dijo "no trato con antiparasiticos y esta demostrado que no sirven en Lyme Disease"; esto fue en el 2009, hoy pueden leer su blog cuando afirma lo opuesto:
"I cannot cover the whole Sapi study. The most exciting finding is that Tindamax (tinidazole) - our premier Cyst-buster, is the most effective drug overall. This "cyst-buster" kills 90% of cysts and spirochetes: by far the best drug. We don't know it's effect on L-forms, but we can guess. Tindamax probably works by an intracellular mechanism. If this is true it should be equally effective against L-forms. It gets even better. Tindamax is the only drug which does a great job on biofilm colonies as well! (not to be discussed now). More on biofilms later. Tindamax passes the blood brain barrier and penetrates well into most tissues. It has been effective in my patients with neurocognitive deficits - neuroborreliosis."
Lo que quiero traerles es lo que estamos viviendo los enfermos de Lyme Disease, una constelacion de sintomas ademas incurables, enfermedades interminables sin respuestas concretas, con tantas negaciones y tantos obstaculos que deberian ser resueltos por el bien de la humanidad para evitar esto se propague y convierta en una pandemia sin limites. Ustedes son los llamados a considerar la importancia de esta infeccion, llamese nueva o desconocida y buscar formas de tratamiento que eviten la propagacion y el sufrimiento de los pacientes. como les digo, tengo 700 amigos en Usa y en Europa y Sur Africa, todos viviendo esto que yo vivo todos los dias, con problemas neurologicos, del sistema linfatico, cardiacos, y tantos sintomas hasta tener animalitos saliendonos por la piel. Aqui hay muchos Doctores haciendo tratamientos con multiples antibioticos intravenosos al mismo tiempo y ya muchos empezaron a investigar la posibilidad de usar anthelminticos. Hay un medico muy reconocido en Europa y ahora qui en USA quien se llama Dr Klinghardt. El se ha dedicado a tratamientos de Lyme Disease y usa medicinas tradicionales y suplementos con hierbas y otros tratamientos poco cnvencionales. Entre los muchos metodos que utiliza, solo para que vean la parte donde trata con antiparasitarios, en su "protocolo", noten que combina Pamoato de Pyrantel con Ivermectina, utiliza Nitaxozanida, Praziquantel y remata con Albendazol; si eso no es lo correcto entonces por que dice que tiene tantos casos con logros que no tienen la mayoria de los medicos tradicionales?
A ustedes les pido de corazon que investiguen sobre el Lyme Disease y que por su condicion de investigadores y profesores emeritos, Directores de entidades Nacionales de enfermedades Tropicales e infecciosas y miembros o participantes de la Organizacion Mundial de la salud, de encontrar validez en mi investigacion, alerten y generen proyectos para controlar, tratar adecuadamente y de ser posible eradicar esta infeccion que esta dejando cuadraplegicos y con demencia a quienes no se tratan debidamente; es una enfermedad dificil de diagnosticar y de tratar y se sufre largamente con ella, asi es que de ustedes depende el escuchar el clamor de quienes ahora necesitan de sus conocimientos y sus practicas cientificas y medicas para el beneficio de todos.
Esta carta la hare publica sin presentar sus nombres para no comprometerlos, pero para hacer el llamado a todos quienes crean que de alguna manera puedan ayudar con esta infeccion que esta azotando a los paises mas desarrollados los cuales por su condicion de super potencias la niegan o esconden para detrimento del mundo entero y de las personas que la estan sufriendo. Apelo a su conocimiento y a su compasion.
Muchas gracias
MPJ.
Enferma de LD y Periodista Colombiana.
Enferma de LD y Periodista Colombiana.
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Maria LymeDisease Lyme is indeed very discouraging lol! Not just saying parasite free, I think it is not bacteria Borrelia free and this one going inside the white blood cells is the one allowing the proliferation of so many other organisms that other wise could be controlled. That is the basic problem; parasites "die easy" but they reproduce in thousands every month if not every day; if the bacteria is there feeding them, and them feeding the bacteria with their "left overs" the problem is much harder to eradicate.
E. F. Side effects of Ivermectin. Where do you get this stuff?
PD R: Maria I asked my mom about getting a doc in Ecuador to send me ivermectin; but supposively u can get horrible nuero side effects that can be irreversible ; any experience with this ???
D R Makes me happy I followed my gut instincts and said no to most all treatments. Artemisinin did wonders for me
PDR Ms Dana How did you dose Artemisinin ?? that's an herbal right ??
Maria LD Dear Dana sorry to tell you Artemisin as the other anti-malarials work in the immune system and suppress it, in fact, this is the reason why I am getting sicker dear G B; I started a couple of days ago a herbal medicine made from "Sacred medicine Sanctuary" that contains Artemisa Annnua, oh God, and the more I took it the more swollen I get... this is kind of funny, me writing to everyone to not take antimalrials and taking it and getting sicker by the minute. Yes, back to ivermectin tonight!
Maria LDSo just to clear this up, I am swollen not because I stopped the Ivermectin but because I started a treatment with Artemisa annua, precisely what I was posting to not do I was doing, oh yeah, live and learn; thank God I found out on time, I'm about to explode!! Where is my Ivermectin caramba lol!
Maria LD: E F and P D R by the contrary Ivermectin seems to be a helper with the neurological infection; it is an anthelmintic made to kill parasites and protozoans; Lyme is a bacteria Borrelia that goes intracellular, especially inside the white blood cells - parasitic?; - the Babesia is a parasite inside the red blood cells, in fact two parasites jump inside the red blood cells at the same time, double worse than the malaria; so, if we must not get anti-malarics because those work by immunesuppression, what to take? anti-parasitics, antifilarials andti-protozoans than won't hurt the immune system nor the Central Nervous system. I have taken Ivermectin for more than a year, small doses and it has been a blessing, by the contrary the Bells Palsy and the neurological symptoms are gone! (The Dr has the Bells Palsy registered in my record, but I don’t have it anymore nor even a small twist in my face!) God is big!
These are my opinions and my conversations with my friends!I hope they are of some help to others suffering not knowing what is going on! It is not a medical advice nor intends to replace any medical information.
NOTE: LYME THE ROLLERCOASTER BLOG DOES NOT OFFER, DOESN'T GIVES, NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.