FACING DEATH!

Someone told me, don't worry this illness is not going to kill you... I said, great, good to know, and laughed!

• I would like to honor Leslie Wermers, and with her to all the patients who had died of Lyme disease; many feeling abandoned by the medical personnel or by the society who blame them for their illness - "Its all in your head"-.

• I would like to honor Sue Baiata who had to end her life to stop suffering after being neglected by many physicians for years; and with her to many who suffer every day of pain and fear who are not crazy but extremely sick; here we are together gathered in one voice .

• The illness is so strong, and everyday is such a struggle that the Lyme sufferer is facing death every now and then! Yes, everyone is going to die, but who's so strong to live with it's life pending at every second?

• There are times that the body is so extremely weak that just chocking when swallowing a drink of water might be a deadly situation!

• Lyme patients suffer "kind of" a heart attack, kind of a stroke, sometimes kind of a paralysis, at the same time might have an arthritis and a cramp that might be muscular or caused by the central nervous system.. yeah, something anyone can handle, not to be worried about right?

• If Lyme Disease is diagnosed early it might not - not sure - but some say it might not be a deadly illness, but, how many cases are misdiagnosed versus how many were early diagnosed? IDSA is now offering a Course to medical personnel to teach them how to recognize early symptoms, all based on their guidelines... meaning based on treating with the minimum medicine to get rid of any responsibility...

• People dies from Lyme Disease but the records say something else like "Heart Failure" or what ever other symptom looks stronger. I think this is unfair because the person was misdiagnosed alive and misdiagnosed dead.

• Not stating that the person died from Lyme Disease is hiding the truth and the magnitude of the infection.

• The Public hearing that IDSA organized to see if there's need to review their guidelines, is it going to consider that each patient is facing a death threat every day? ha!

• Are they (IDSA) going to analyze the magnitude of the problem that now is affecting the public health in the US and threatening the rest of the world?

• Are they (IDSA) going to change guidelines to help ill people with Lyme Disease who constantly face negligence and are sent to a painful life and death?

• I would also love to be able to thank so many who have dedicated their lives and jobs to help others who are suffering severe illnesses; thank you from our hearts and souls and may God in justice return to you lots of love and care when ever you need it the most.

Please watch the short video of Leslie Wermers -never met her, but she fought for me and I fight for her -; and please read the beautiful article Bob Baiata wrote about her sister Sue.

• Leslie's link is here, just click!
• "My Sister's Batlle with Lyme Disease, John Baiata's article, click here!

-GRACIAS FOR READING ME! 

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.  THESE ARE JUST MY THOUGHTS, IDEAS, RESEARCH AND EXPERIENCE SHARED.

LYME BUG SURVIVOR!

What is that illness that causes multiple symptoms, including many very dangerous debilitating ones, that many people suffer,- specially in North America- but most of the Doctors deny and don't know what it is and how to treat? Ok, lets not call it LYME, so how should we call it? "The Bug"! I got the BUG and it has changed my life to the point I have no life now! I know I have the bug because when I take antibiotics the bug debilitates; when I do not take antibiotics or stop taking them I debilitate; simple! Oh, this "reasoning" seems not to be logic for the last Doctor I saw; he said that the antibiotics were not working because I relapsed every time, so "it had to be a virus". Again Doc, if it is a virus it won't have an initial response to the antibiotics, oh well, there will be no response at all, come on! (and that goes for you too family Doctor who said it could be an allergy "because allergies affect you women so hard!" and then when he saw my miserable face he said "if I'm wrong I'm wrong.." yeah you are, you were, terribly wrong and negligent!) Survivor, how? Using antibiotics for longer terms - as long as I can buy them somewhere else; or as long as I can make them last. I responded to Ciprofloxacin, but the herx is so strong; responded somewhat to cephalosporin; responded to Amoxacillin, and Zytro; also had some strange response to Doxiclor and Levofloxacin; and had amazing results when I took Plaquenil and Amoxacillin with Sulbactam. This mix called "Unasyn" - in the US, and just comes in injections in this country it is also called Sultamicillin in other countries and do come in pills- combines Amox with Sulbactam and voila, for some reason after more than 15 days I can have happy, even called “glorious days”!!! EVERY DAY, ANYTIME I CAN, I PRAY AND HOPE THAT MANY SUFFERERS LIKE ME CAN HAVE THESE GLORIOUS DAYS! IS THERE ANY DOCTOR OUT THERE? I KNOW MONTGOMERY DOCTOR IS THERE, AND THERE'S MY DOCTOR WHO LIVES FAR AWAY IN SOUTH AMERICA - DR QUINTERO - BUT,ARE THERE SOME OTHERS WILLING TO REALLY HELP? HOPE YES! God bless.

I HAVE HAD MULTIPLE SYMPTOMS

And I have had multiple Doctors, and I have had multiple pains and sufferings; and multiple situations where I can't move or help my self. As I have also had multiple antibiotics and multiple reactions, some of them really good. And I have read hundreds of pages where multiple symptoms are considered this or that; and I even tried to fit in the blog of the Chlamydia Pneumonia sufferers, but they veto me because I was not having at that time multiple antibiotics as my treatment. So I keep on trying to be a normal person, with multiple activities, but limited to the treatment I get, because it is more the opposition and the lack of help, than someone knowing what to do and how. And then I remembered this Doctor from my home country and called him, and I've got hope and multiple types of treatments; he is open minded and very compassionate. I've told him about this blog from the Montgomery Doctor and he listens and learns! but he is far and cannot order lab test or directly treat my multiple symptoms, but God is big and I still survive. I have had now multiple antibiotics and can tell a long experience. The most important is that this "multiple' symptoms are really just one same illness, call it how you want it, generated by a bug or bugs; and they go when properly treated with antibiotics during long periods of time. The multiple short treatments I've got before where not enough to kill the bug! I just want to write thinking it might help someone else; or at least share and express my self! May this be the first of multiple articles; the next won't have the word multiple, promise; it was just a game! Being multi-symptomatic generated an adverse reaction from 4 of the 5 Doctors who have seen me; they get scared and send me to "other specialist" or just give me a pill "for the anxiety"... poor them, they know nothing out of their books!!!! Thank you for sharing, God bless you!