LYME, THE REAL SYMPTOMS!

It is now being said that Lyme disease is a multi-systemic illness? sounds so huge! I would like to translate that into more common words based on reality. I do ask you to please excuse me ahead due to words are for sure not enough to describe interminable nights and days of pain, suffering and fear; plus, English is not my first language so I have a limited vocabulary and probably a very particular style in my writing when describing so, sorry for that too. Let's take a look at each "basic" symptom of Lyme disease. Let's start by a very common one, that seems to be "simple" but is so extremely complex and delicate in reality:

1. "Patient presents Neck Stiffness". Who ever reads or hears this could think it is the common stiffness many had felt a couple of times in their lives; but not, the "real" description is far from that: (Nothing that a chiropractor can fix, sorry!)

• the walls of the neck swell up, every gland in the neck swells too and this hurts of course; the sides of the neck become like two hard pillars that impede the head to move and if it does, it really hurts; - like your neck stiffness multiplied by a hundred? - wait, there's more:
• swallowing is painful too, but worse because the trachea feels like loose, and the process of swallowing becomes very difficult, it is slower than usual and it seems that you are going to choke even with your own saliva; - slower swallowing is a problem of the central nervous system, meaning neurological-;
• but the tongue is swollen too so just by being there, by having your tongue inside your mouth - daa- you are kind of choking, no need to drink anything either; - the Chinese Doctors always look at the health of the tongue, swelling means what?
• and due to all this swelling in the neck, the thyroid is not only swollen herself, but also pressed up and hurt by everything around her, so the person gets more symptoms like palpitations, bradycardia (slow rhythm of the heart), arrhythmia (not a regular beat), problems with the hormones, hair loss, dry skin, etc-
• did I mention fear, panic disorders, sleeping problems, depression? just some other symptoms generated by this particular gland called thyroid; and this will have to go to other category because other of the "simple" symptoms Lyme generates is the alteration of all the lymphatic system, meaning the glands of the body, but that's another topic.
• and cannot end talking about the so called "neck stiffness" without also mentioning that this swelling goes deep inside the head, just where the neck gathers with the skull in the back. There's a gland - I think the pituitary - that when swollen causes such a deep pain I call it "The Brutal Pain", and it irradiates to the inside of the head and to the eyes - heat helps a little to relieve it-. Just part of the stiffness... and causes blurry vision and sinus problems...
• The swelling is so huge it might affect the skin of the head too, so the headache is really an encephalitis... painful and dangerous, needs fast attention!
• In my humble opinion, the neck stiffness is an indicator of whether the treatment is working or not. I think the neck stiffness is a result of having the bugs up in the nasal sinuses or maxillary, and the liquid that comes out from the nose or throat it is so contaminated that the body fights it with swelling. I would like to better describe my theory but that is not the point today. I have seen that by treating the sinus with series of antibiotics sometimes many or most of this symptoms go away. Also use salt water to clean sinus passages and everything you might have to help your self!

2. "Fatigue". If someone comes to me and say I have fatigue, I cannot relate as to truly understand that the person is in such bad condition that can barely move, walk or do any simple activity.

• The fatigue that affects a Lyme disease patient is not just being a little tired, means the physical body is out of energy to operate;
• The fatigue is also having all the muscles loose, like fallen, like not tied to the bones, so the body can hardly move - and it hurts and then it is called "fibromialgya"? just a symptom?
• The so called fatigue is also when the bacteria and parasites affected the nervous system, so the response of the muscles and tendons and all the "things" is not as it would be in a healthy situation; the person is not really fatigued, in reality it is not able to do anything!
• I would like to add here the symptom called "Generalized malaise" - flu like symptom. It is really a flu but hundred times stronger and lasts forever, simple ah? So I think it should go in the "fatigue" category!
• yeah, fatigue seems to be understood as lazy person, not willing... and it is the opposite!
• and in other situations it is precisely one of the symptoms that might easily be considered as an indicator of other illnesses and leads to lots of misdiagnoses...

3. Neurological Symptoms... people think neurological means crazy, or even some Doctors find a neurological symptom and immediately refer the patient to a specialist and or to a psychiatrist... deep water very scary to swim ah?

• So let's start mentioning some of these like the so called Bell's Palsy... it is a side of the face that gets kind of paralyzed like the name implies, but it moves when the person talks or eats; it is not that there's no control like when suffering a stroke but the feeling is similar to it, and I bet Lyme sufferers get the "Palsy" precisely due to a "kind of stroke" Lyme Disease "imitates" so well... this symptom is many times a huge indicator of the presence of the bacteria Borrelia... nasty ah? 'cause is not only the suffering, the pain, the having the face numbed like when you go to the dentist, but also the self esteem is affected, sick and ugly ah? - may I say? the long term antibiotic treatment helps to have the face more symmetric-
• some Doctors have learned to "read" into the neurological symptoms to find out and rule in a clinical diagnostic the disease. The tests are not complicated and any Doctor should be able to do them. It is said that the central Nervous system is affected with Lyme Disease, so neurological symptoms might mean Lyme, not just neurological!
• People with Lyme is so hurt that many times don't realize that they have lost sensation in the legs, or down in the toes; many don't know the blurry vision or double vision is a neurological symptom. Some cannot even coordinate touching their nose with one finger and loose many other "simple" skills.
• Lyme sufferers might get "inner pains", like inside a leg or inside the hand, and it is purely neurological; plus also have at the same time the muscular pain and the joint pain all together-(as I titled one of my blogs "Lyme, like I've won the lottery", meaning it seems like such a unique astronomic situation! ) So, this inner pains are like a lighting, burning pain; and some cause the fingers or hand to curve, to roll, to be uncontrollably... terrible!
• Heat - ha - heat sensations inside the extremities or outside in the skin. Sometimes the feeling is unbearable, other times is just there, constant bothering...
• The senses like smell, taste or hearing affected increased or decreased. There's people who suffer of terrible ear pains because they get an increased hearing, and the sounds seem to be so strong the pain becomes unbearable even using ear plugs. It is a real killing pain!
• Other neuro symptoms could be increased smell, and this "simple" symptom affects the taste for the food - so it is loosing the pleasure of eating - and if you add these to the anorexia generated by the parasite babesia well, there's a huge bad situation there involving the vital act of eating.
• don't forget the light sensitivity, it's like standing in front of the lights of a huge concert, where you can barely see what's at the other side; and it hurts! I mean, not only unable to see due to the double vision or the blurry one, but because of the light; and not being able to enjoy music because it hurts...

4. Arthritis and muscular. (Had to gather these as if they could be easy to explain, but this is getting so long!).

• Most of the readings indicate that the person gets a pain in a "large" joint, meaning not all the joints and points to the bigger ones like the knees, well, in my case for example my fingers and wrists have been the ones affected. Maybe because I use them before so much writing? I do not run or make that type of exercise so maybe that's why my knees doesn't hurt? would be good to compare. The point is, the symptom refers to a type of arthritis but tries to show it like a sign not as an illness by itself, differentiated by precisely not affecting all the body, or all the joints but "just" some or even one?
• The "Lyme arthritis pain" goes with long antibiotic treatment; I don't know if the arthritis does too? (I am here writing all this thanks to antibiotics if not I will be trying to sleep, writing in my mind, unable to move my fingers for so long!)
• So, just imagine someone with the neurological symptoms and the arthritis ones together singing the same song; and to these please add the muscular pain that also come in a variety of feelings...
• some of the muscular pain, mentioned in the book like just a hurt, is in reality a sharp deep pain that shows out of the blue like cutting the muscle; it's fast and very extremely painful; when you are about to yell it is gone.
• The painful sharp pain shows from time to time, and it comes and goes because the person is having treatment and because the person is not having treatment too! (Is this the fibromyalgia that many Doctors refuse to see like muscles affected by bacteria and or parasites?)
• Other is a muscular pain that lasts, that persists and it is there no matter how you move, or if you use hot water or a cold ice... nothing helps! it is a very "stable' constant pain not as strong but yes a seven in a scale of ten.
• This long lasting muscle pain is part of the "fatigue" situation! I believe the long pain is due to having the muscles "loose," meaning that Lyme Disease affects the capacity of the muscle to contract and the muscle structure is lost and the person gets weak, obviously!

5. The HEART! This special symptom could go with the "muscle division", because it is a muscle, or with the organs affected, but the heart symptom is so particular with Lyme Disease that should be "honored" in a special classification...

• One of the first, maybe very distinctive symptom of Lyme heart relation is the bradicardia. It is feeling that the heart is beating stronger but slower... is such a weird feeling. People gets scared of having the heart stopped and the "guidelines" recommend to take special care in this cases; well, care given by whom may I ask, because Doctors don't seem to recognize this symptom well. They just send the patient to a Cardiologist who is going to say that the heart is healthy and there's nothing else to do, so the Lyme sufferer will suffer the heart pains and palpitations with no help nor hope!
• Oh, well yes, there is something the cardiologist might probably say: "you seem to be very anxious, take these pills for anxiety," ignoring the symptom behind the fear... and who is not anxious feeling the heart is doing funny weird strange painful things?
• The heart is being affected directly by the bacteria and by the parasites if this is the case. The heart has to be treated and taken care to avoid damage, don't ask me how.
• Palpitations, fast and sometimes with funny rhythms become part of the every day symptoms of many Lyme sufferers. One thing is to say palpitations and you might relate like when you do exercise and do "cardio" and other thing is to have that speed and strength without moving a finger, or precisely literally because you just moved a finger and those palpitations hurt, hurt badly.
• I get palpitations because I have not had the medicine, and the body shows signs of not being fine; but later, because I took the medicine -and it is strong - I also get other type of palpitations. I read something that indicated that the medicines for the malaria were found to be good to regulate the heart palpitations; incredible ah? please do research!
• Other heart symptom with Lyme Disease is a deep pain, inside the chest, deep and sharp but not as strong. It is a pain that lasts, that stays and doesn't let you move because it is very incapacitating. This pain is very confusing because the person cannot tell if it is a sign of a heart attack or not.
• And do not forget that the heart, of course is a vital part of the circulatory system, and it is found that Lyme disease, as some times happens with Lupus and other diseases, affects the flow of the blood and the veins - the person feels pains in the veins inside the legs or hands, "just" as part of this multisystemic illness... like if it were not enough with all the other stuff.

Because this writing is so long, and my hands are really tired now, I would like to leave the long list unfinished and to close saying that what seems to be "just" a group of symptoms is much more than what a "regular illness" might present; and, as you can easily see, it is a very extreme painful situation that requires urgent medical care to help ease so many symptoms popping at the same time. This very sickening illness is not CURED by two weeks of Doxi or in the "worst cases" with four weeks of IV antibiotics; sorry, it requires months and years of a very careful compassionate professional treatment! Ignoring such pain and suffering is obviously negligence! And let me clear again that these words come from a patient not related to anyone in the industry or medical field or suing someone or anything, just what my suffering had taught me and what I think should be said or made to help others.

• HEY I DIDN'T MENTION THE RASH AS A SYMPTOM, THE SO CALLED EYE BULL'S RASH? WELL, IT IS A SYMPTOM BUT NOT A UNIQUE INDICATOR BECAUSE MANY TICK BORNE ILL PEOPLE DON'T EVEN HAVE IT, AND WORSE, MANY DOCTORS IGNORE IT!

• More professionally and better explained symptoms in this place called Lyme disease Foundation, Inc, click here and read!

MY GOOD DAYS ARE CALLED GLORIOUS DAYS; TODAY WAS ONE OF THEM! THANK YOU GOD!

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.  THESE ARE JUST MY THOUGHTS, IDEAS, RESEARCH AND EXPERIENCE SHARED.

FACING DEATH!

Someone told me, don't worry this illness is not going to kill you... I said, great, good to know, and laughed!

• I would like to honor Leslie Wermers, and with her to all the patients who had died of Lyme disease; many feeling abandoned by the medical personnel or by the society who blame them for their illness - "Its all in your head"-.

• I would like to honor Sue Baiata who had to end her life to stop suffering after being neglected by many physicians for years; and with her to many who suffer every day of pain and fear who are not crazy but extremely sick; here we are together gathered in one voice .

• The illness is so strong, and everyday is such a struggle that the Lyme sufferer is facing death every now and then! Yes, everyone is going to die, but who's so strong to live with it's life pending at every second?

• There are times that the body is so extremely weak that just chocking when swallowing a drink of water might be a deadly situation!

• Lyme patients suffer "kind of" a heart attack, kind of a stroke, sometimes kind of a paralysis, at the same time might have an arthritis and a cramp that might be muscular or caused by the central nervous system.. yeah, something anyone can handle, not to be worried about right?

• If Lyme Disease is diagnosed early it might not - not sure - but some say it might not be a deadly illness, but, how many cases are misdiagnosed versus how many were early diagnosed? IDSA is now offering a Course to medical personnel to teach them how to recognize early symptoms, all based on their guidelines... meaning based on treating with the minimum medicine to get rid of any responsibility...

• People dies from Lyme Disease but the records say something else like "Heart Failure" or what ever other symptom looks stronger. I think this is unfair because the person was misdiagnosed alive and misdiagnosed dead.

• Not stating that the person died from Lyme Disease is hiding the truth and the magnitude of the infection.

• The Public hearing that IDSA organized to see if there's need to review their guidelines, is it going to consider that each patient is facing a death threat every day? ha!

• Are they (IDSA) going to analyze the magnitude of the problem that now is affecting the public health in the US and threatening the rest of the world?

• Are they (IDSA) going to change guidelines to help ill people with Lyme Disease who constantly face negligence and are sent to a painful life and death?

• I would also love to be able to thank so many who have dedicated their lives and jobs to help others who are suffering severe illnesses; thank you from our hearts and souls and may God in justice return to you lots of love and care when ever you need it the most.

Please watch the short video of Leslie Wermers -never met her, but she fought for me and I fight for her -; and please read the beautiful article Bob Baiata wrote about her sister Sue.

• Leslie's link is here, just click!
• "My Sister's Batlle with Lyme Disease, John Baiata's article, click here!

-GRACIAS FOR READING ME! 

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.  THESE ARE JUST MY THOUGHTS, IDEAS, RESEARCH AND EXPERIENCE SHARED.

LYME, LIKE IF I'VE WON THE LOTTERY!

• Lyme is considered the number ONE tick borne illness of the US, but no one has heard about it, and I got it, wow!

• And it is established that it is located in the North East Coast of the US; I have never moved out from Florida during 10 years I’ve lived in this Country except for last month when finally went to Maryland to see the Doctor that could test me to see if I got the illness.

• In some cases, Lyme can be a mild illness, and people could have it for years without knowing they’re infected; not me, it has been horrible since day one and has not stopped being painful hard during almost three years.

• Suffering from Lyme Disease is about having to fight or surrender under the domain of a bacteria transmitted by a tick; the bacteria is known as Borrelia Burgdorferi. It causes symptoms like malaria, meaning kind of flu pains all over the body and in the bad cases the problems spread to the joints, muscles, heart and central nervous system; wow, lucky me the one I got is the very bad version!

• But this is just the beginning… The tiny ticks pass not only the Borelia, but other co-infections which are other bacteria or parasites or protozoan; guess what, I also got one called Babesia, also called "The Malaria of The Northeast," which, as the second name indicates, generates “malaria like symptoms”, meaning, if one is not enough I got two of the same type just to make sure!

• But, of course, if Lyme sounds bad, Babesia is the “fierce” of the family; its symptoms are extremely stronger and faster! It is “thought to be the second most common blood parasites of mammals”, so I got the first and second most common dangerous illnesses transmitted by bugs in the US; that is something ah? More, considering that I came from a “third world country” that has tropical illnesses, and that twenty years ago I lived during two years in a region in the middle of the jungle, at the Pacific Coast of Colombia, considered one of the most endemic zones of malaria of the world, and never, ever got any illness…

• So, coming to the US to get a stronger and more sophisticated type of malaria like illness, (in fact two different ones), much more difficult to eradicate, not well known and in most cases dismissed by medical personnel is really a unique weird “winning” situation.

• And it is officially said: “The number of symptoms and duration of illness in patients with concurrent Lyme disease and babesiosis are greater than in patients with either infection alone”; as I said, got two for the price of one!

• But when I win, I win big! The tinny tick also gave me two more types of “pathogens” or protozoan or, calls them bugs, which the lab could not identify but who are inundating my blood and who knows the harm they’re doing there…

• My recently acquired expert Doctor says Babesia appears as a co-infection in many Lyme infected patients; but the book reads that it will “always be a mild case unless the person had their spleen removed surgically” … what? I didn’t! And it is certainly not mild!

• It also reads: “severe cases are also more likely to occur in the very young, very old and persons with immunodeficiency”; I’m not any of those nor have HIV or had any other type of illness!

• And the last more funny excerption of Babesia: “Babesiosis develops only in patients who live in or travel to an endemic area or receive a contaminated blood transfusion”... so, I never got a blood transfusion, have not traveled anywhere different from Central Florida or Miami which leads to saying that this might be “an endemic area” ??? No way! Disney doesn’t have dangerous bugs, just nice mice that sing and play all day!

• “The health officials say that Babesia Microti is the most common strain on the East coast.

• Babesia Duncani is only supposed to exist on the West coast.” Really? I got the one of the West Coast, how did it travel to Florida?

• “Babesiosis in humans is characterized by anorexia, fatigue, fever, sweating, and generalized myalgia”; I have increased smell and lost of taste due to the Lyme and add the anorexia with the Babesia; a double win? More over if I had gained thirty pounds when I never changed my weight in more than 40 years plus I’m barely eating a little meal once a day!

• “The best way to find out if you have Lyme disease is to talk to your family doctor about your symptoms. Blood tests aren't always necessary to make the diagnosis”. Can I “LOL”? Saw seven Doctors, some family Doctors, other specialized in the Heart, or the Endocrine System and even an “Infectious Disease Specialist” who said Lyme didn’t exist in Florida, so, no one diagnosing me correctly was just “lucks”?

• “A relatively recently described babesial parasite, the WA1-type, has been shown to be the causative agent in seven human cases in the western US. This parasite is closely related to babesial parasites isolated from large wild ungulates in California. Isolated cases of human babesisosis have been described in Africa and Mexico, but the causative parasites were not well characterized.” The WA1 type is the one I “won”… I’m in Florida, Central Florida, not California or Africa! Other writings talk about China, Egypt and Taiwan; may be I got the tick from something I bought from the dollar store?

• Now what? I have no way to convince these Gringos that they have a really endemic, dangerous, painful illness disseminated in their whole country. I got LYME DISEASE and have to suffer the worst strain of it without any hope ahead, just supported by my family who are surprised to see this type of situation could occur in the so called “the most powerful country of the planet”. We have better medical attention even in the smallest poor village of our miserable third world class country. They know what malaria is, they have the medicine to treat it and they cure it. The government takes measures to prevent the illness and to stop any possible dissemination over the other regions or the world. That is not seen here with their endemic illness; and for what I have read, England and the other European Countries are also trying to cover the sun with their fingers ignoring the severity of the illness; but later on they all will know they had generated a pandemic due to the lack of attention and proper care. Canada and some regions of Germany are trying to work their part, God bless them!

• Note 1: Please excuse my irony, it is my way today of expressing my frustration. I am now having an amazing Doctor who is taking good care of me and his 75 patients a week; I am thankful. I hope I can open the eyes of some others that don’t know about this!

• Note 2: As a Social Communicator and Journalist I can present documentary proof of what I say here and of my medical history.

SAW THE DOCTOR, GOT CURED!

SAW THE DOCTOR, GOT CURED!

• Nothing cures more than learning that someone is willing to help you to the best of their knowledge! Your mind is prepared to participate in the process of healing the body; it’s a particular positive situation. Everyone tries their best and things go as they should. “It is called the placebo effect; people have confidence in Doctors, they have confidence in diagnoses, confidence in medicine. Sometimes they get a little better because they think they will” (from the TV series “House”). I think this attention that generates the confidence is the minimum any person should get when sick, and moreover when this person is paying to receive the medical service; but, sorry to say, that is not always the case!

• So, the other side is that there’s nothing more painful than being sick and not receiving the proper medical help! Many, many people, especially in the US, probably agree with me; and from those, many are multi-symptomatic patients whom “their Doctors” left alone usually classifying them as patients with mental problems. Me, being one of those, with no major problem than 21 symptoms, in my “reduced medical history version”, not being classified as crazy, but yes, as first having a Thyroiditis, then an allergy and later on with maybe a bronchitis, or a virus or “something not known yet”, felt alone, abandoned to my luck in my own painful situation. No misery could be described worst than no one willing to help you when you need it the most! Then they wonder why the patient got depressed?

• So, after months and interminable days of uncertainty, of abandonment and lack of hope, a light shows at the end of my tunnel. It was a blog written by a Doctor in Montgomery County, Maryland, who is not afraid of treating them when they have multiple complicated, painful, sometimes weird symptoms. Just that blog raised my spirit. That blog gave me hope and made me fight for a better treatment and wellbeing. I felt I deserved to be helped and not be ignored. I gained some confidence believing that I might even deserve to get cured and I probably still don’t have to die in pain, ignored by the medical personnel. So I read the blog and found that bacteria, parasites and different types of microorganisms can generate multiple symptoms. Also learned that these bugs might be so strong that to combat them might be needed not one, but multiple antibiotics administered during longer periods of time. This knowledge was the beginning of my long intent to a healing journey. I had the invaluable support of a Doctor who lives in my home country in South America and with him I started antibiotics treatments that little by little made me taste a bit of a great healing process.

• But that’s not all. I recently traveled through 7 states and went to see this Doctor in Maryland; and it was what I expected it to be, even better! He heard all my stories – asked me if I had a short version, lol! – and didn’t care of how hyper I was, nor if I looked nervous or “anxious”; he just listened with an open mind and after one hour of conversations , without judging me, he end up saying: “I’ll help you”. I really wanted to cry, this time of happiness. The “Tears of Joy” this Doctor describes in one of his blogs, were mine this time. Not because I was healed already, not because the Doctor had already figured out which was my problem; nor even because I knew if I could get cured; but just knowing that he had the will, the intention, and the heart to see what could be done for me, to look the possible causes of my illness, was much more than what I had received from 4 Doctors I had seen before. During this visit, internally, mentally, I got cured because I saw the possibility of getting better when before there was no hope. I felt stronger as someone that has a support to hold you until you can walk on your own. I know I am not surrendering for nothing less than better days and nights and I believe that I can not only get better but I can also help others, supporting them in their healing process.

• Yes, from the thorn the rose. Let’s build a group of patients that deserve to receive proper careful treatment; I’m signing first!

Thank you Montgomery Doctor, and special thanks to his staff who cared for me as if I were a close friend or relative; love you all!

LYME: MULTIPLE PAIN ILLNESS!

Yeah, it is easy to live when you are healthy, but when it comes to be in pain, or with difficulty to move or even think, things dramatically change. Your perception of the life changes, and the way the life around you sees you, changes too! When I got LYME or how you want to call it multi-pain, multi-symptomatic illness, I just got out of the game almost immediately without time to even argue! From one day to another I passed from being the one that pushed the world, to be one of the slow ones that move around the mall being pushed in a wheelchair! Yes, I imagine these sounds like the poor sick woman story and how she drank a juice that cured all her problems. But not; it is quite the opposite. This is the poor woman story where there are not juices to cure her and where no one cares if she doesn't get them either. And please do not misunderstand me. I do have a great amazing family who cares enormously for me, but there are no Doctors and no medicine personnel who want to try to help me even though it is not an incurable illness; at least even though it is a treatable illness. Why I do not get the appropriate care? because they are fighting over the name of the illness, the way it is acquired, the treatment and I imagine the insurance providers, the medical schools, etc! So they are not treating for this bug, yet! political people ah? But this is not about me; or not totally about me. It is about an illness that impedes a regular life; an illness that can leave a patient painfully quadriplegic and absolutely crazy, if not treated on time, out of time and after time!!! - as one of the Doctors that I have gone to mistakenly told me: "Antibiotics don't work if it is chronic Lyme"; false! What doesn't work is to not treat, and to not treat long enough to fight the millions of bugs that are affecting the body. And what is worse - not just about me, see? - if Lyme disease is not being taken care by medical organizations, it can easily become a pandemic! How and why? because if now Doctors don't really know how to treat it, what might happen if they ignore it and it grows to incredible proportions? many are infected and it seems that this number grows every day. Why it is being ignored as an illness, and why Doctors are being negligent with their patients? Yes, as human beings we all are condemned to die, but no one should die the day before! Lyme disease is a deadly condemn due to the lack of care. Patients are left to die immobile in pain, in a mental cloud; everyone think they just got old and it's their time. Old at 35, at 65 or at just five years of being born? weird cases ah? The funny are the ones like me, they easily think we are menopausal; so easy to diagnose. Who cares for a patient in pain? and who cares for a patient with multiple pains and mixed illnesses? BUG OFF!

CAN DOCTORS TREAT LYME DISEASE?

"If a patient is doomed to a horrible death, how can anyone with a drop of compassion argue against therapy?". These words belong to the blog of the "Montgomery Doctor" and should be printed in every Doctor's chart. How can Doctors ignore the suffering of a Lyme patient and the possibility of treating and healing him or her? Why they fight about calling it different ways instead of really trying to help the patient? It is easier to say that this patient who is suffering neck stiffness, generalized fatigue, arthritis pain, muscle pain, diarrhea, blurry vision, tingling in hands an feet, palpitations and problems remembering words or sleeping disturbances, is really semi-crazy person and should better take some 'lorazepam' or some psychiatric medicines, than having to go through all this pain and suffering and try to solve it as if you were a real healer! Then, if the patient gets worse, Doctors can say it is a strange illness generated by the immune system that cannot be defeated; easy! (Or a virus but we don't know which?) (Dr. House might know!!) Why multi-system disease patients are not treated when these are the ones suffering the most? - Because Doctors cannot treat more than one illness at the time? - Because books for Doctors recommend not to treat more than one illness at the time. - Because it might be very confusing not knowing what to treat first, or what to do? (which shows not only negligence but ignorance; books explain this?). - Because if it is considered just ONE same illness many would loose their "specialties" and they charge specially for it. - Because the more Lyme is seen as different illnesses, the more Doctors the patient has to see, more tests, more drugs; better business! - Because having a so much creepy patient is scary, better send him to someone else! - Because North America doesn't want to admit it has a "proper" illness as South America and Africa have Malaria! (I think this is one of the most heavy reasons, believe it or not!). - Because it is easier to treat a patient for a month than having to treat for years, not only administering antibiotics and different medications but testing their vital organs and their responses to the treatment. Money again ah? - Because - this is funny, cynic funny- because LABORATORIES CANNOT DETERMINE IF IT IS LYME! incredible, it is out of any mind seeing that what is detected is the answer of the body to the bacteria, but not the bacteria itself. And worse, the Montgomery Doctor and others have found some microorganisms living in the blood of the Lyme disease patients and still any lab has said what it is and how to kill it! The worse is the patient the more of these bugs he/she has... come on!!! Hey, you should get help from the South American laboratories, they might know...? - Because there are more Doctors fighting the ones treating Lyme than treating their own patients!!! (funny ah?). Doctors and medical personnel dedicated to annihilate and exterminate who ever say Lyme disease is treatable with long term antibiotics! - Because of so much ego. There's no collaboration between different scientist, medical personnel and laboratories; the only thinking is the money. - Because there are no expensive medications created specially to treat the terrible Lyme disease. Like cancer, people has to pay a lot to be treated, in this case, they have not invented their unique formula to charge for it. I just created a very lucrative business - an this in the middle of my "fog mind". - Because no one cares for the ones left behind. If you are rich and famous you are well taken care, but if you get deadly sick, and are poor or not rich, better start praying your last ones... - Because even the possible cause for acquiring the illness is still in doubt. Some say the tick (American?) is the only one cause, others now say maybe dentists? shhh, do not touch the untouchables, they are perfect! - Or what about thinking it is a bacteria that lives in the hospitals and clinics of NORTH AMERICA?... ha, impossible! -Because there are not enough reasons to treat Lyme as a multi-systemic multi-symptomatic illness. No political reasons, no economic reasons, no medical reasons (due to there are no expensive schools to prepare Lyme specialists), so until today they are just pragmatic Shamans! Plus there are no patient reasons: has anyone died from Lyme disease? So, you are not going to be understood dear Montgomery Doctor, they don't want you showing off by "curing" Lyme patients; how can you dare? They argue against your therapy because it is not under their rules, their business and their interests! So, as a patient I know God is there and He is there for me too!

LYME BUG SURVIVOR!

What is that illness that causes multiple symptoms, including many very dangerous debilitating ones, that many people suffer,- specially in North America- but most of the Doctors deny and don't know what it is and how to treat? Ok, lets not call it LYME, so how should we call it? "The Bug"! I got the BUG and it has changed my life to the point I have no life now! I know I have the bug because when I take antibiotics the bug debilitates; when I do not take antibiotics or stop taking them I debilitate; simple! Oh, this "reasoning" seems not to be logic for the last Doctor I saw; he said that the antibiotics were not working because I relapsed every time, so "it had to be a virus". Again Doc, if it is a virus it won't have an initial response to the antibiotics, oh well, there will be no response at all, come on! (and that goes for you too family Doctor who said it could be an allergy "because allergies affect you women so hard!" and then when he saw my miserable face he said "if I'm wrong I'm wrong.." yeah you are, you were, terribly wrong and negligent!) Survivor, how? Using antibiotics for longer terms - as long as I can buy them somewhere else; or as long as I can make them last. I responded to Ciprofloxacin, but the herx is so strong; responded somewhat to cephalosporin; responded to Amoxacillin, and Zytro; also had some strange response to Doxiclor and Levofloxacin; and had amazing results when I took Plaquenil and Amoxacillin with Sulbactam. This mix called "Unasyn" - in the US, and just comes in injections in this country it is also called Sultamicillin in other countries and do come in pills- combines Amox with Sulbactam and voila, for some reason after more than 15 days I can have happy, even called “glorious days”!!! EVERY DAY, ANYTIME I CAN, I PRAY AND HOPE THAT MANY SUFFERERS LIKE ME CAN HAVE THESE GLORIOUS DAYS! IS THERE ANY DOCTOR OUT THERE? I KNOW MONTGOMERY DOCTOR IS THERE, AND THERE'S MY DOCTOR WHO LIVES FAR AWAY IN SOUTH AMERICA - DR QUINTERO - BUT,ARE THERE SOME OTHERS WILLING TO REALLY HELP? HOPE YES! God bless.