FACING DEATH!

Someone told me, don't worry this illness is not going to kill you... I said, great, good to know, and laughed!

• I would like to honor Leslie Wermers, and with her to all the patients who had died of Lyme disease; many feeling abandoned by the medical personnel or by the society who blame them for their illness - "Its all in your head"-.

• I would like to honor Sue Baiata who had to end her life to stop suffering after being neglected by many physicians for years; and with her to many who suffer every day of pain and fear who are not crazy but extremely sick; here we are together gathered in one voice .

• The illness is so strong, and everyday is such a struggle that the Lyme sufferer is facing death every now and then! Yes, everyone is going to die, but who's so strong to live with it's life pending at every second?

• There are times that the body is so extremely weak that just chocking when swallowing a drink of water might be a deadly situation!

• Lyme patients suffer "kind of" a heart attack, kind of a stroke, sometimes kind of a paralysis, at the same time might have an arthritis and a cramp that might be muscular or caused by the central nervous system.. yeah, something anyone can handle, not to be worried about right?

• If Lyme Disease is diagnosed early it might not - not sure - but some say it might not be a deadly illness, but, how many cases are misdiagnosed versus how many were early diagnosed? IDSA is now offering a Course to medical personnel to teach them how to recognize early symptoms, all based on their guidelines... meaning based on treating with the minimum medicine to get rid of any responsibility...

• People dies from Lyme Disease but the records say something else like "Heart Failure" or what ever other symptom looks stronger. I think this is unfair because the person was misdiagnosed alive and misdiagnosed dead.

• Not stating that the person died from Lyme Disease is hiding the truth and the magnitude of the infection.

• The Public hearing that IDSA organized to see if there's need to review their guidelines, is it going to consider that each patient is facing a death threat every day? ha!

• Are they (IDSA) going to analyze the magnitude of the problem that now is affecting the public health in the US and threatening the rest of the world?

• Are they (IDSA) going to change guidelines to help ill people with Lyme Disease who constantly face negligence and are sent to a painful life and death?

• I would also love to be able to thank so many who have dedicated their lives and jobs to help others who are suffering severe illnesses; thank you from our hearts and souls and may God in justice return to you lots of love and care when ever you need it the most.

Please watch the short video of Leslie Wermers -never met her, but she fought for me and I fight for her -; and please read the beautiful article Bob Baiata wrote about her sister Sue.

• Leslie's link is here, just click!
• "My Sister's Batlle with Lyme Disease, John Baiata's article, click here!

-GRACIAS FOR READING ME! 

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.  THESE ARE JUST MY THOUGHTS, IDEAS, RESEARCH AND EXPERIENCE SHARED.