LYME DISEASE IS A PARASITIC INFECTION!

 Borrelia Burgdorferi is a small PARASITE, transmitted by a tick, that initially invades the blood of the human and from there it travels to different organs and tissues of the host.  Borrelia is a parasitic infection not  just a bacterial infection, unless bacteria is looked at as a small parasite.  I have not read an article or a message anywhere that states this I have said here above; every where it is said that Borrelia is a "Bacteria" and it is not specified that it is an intracellular bacteria, meaning a parasite.

Of course by treating Borrelia as a bacteria the management of the parasitic infection might not be adequate or sufficient and the parasite might be having options to survive better and to even kill the host. Not saying that Lyme Disease might also have parasitic co-infections is another negligence that must be addressed to save the lives of many people..

Simple observation leads to the obvious conclusion, no need to be a scientific: "Intracellular parasites, such as bacteria or viruses, tend to rely on a third organism which is generally known as the carrier or vector. The vector does the job of transmitting them to the host."  Parasites, meaning big bugs, meaning bugs that can grow and act very different from a small almost invisible bacteria:  " Parasites evolve in response to defense mechanisms of their hosts" - this is not an act of an insignificant organism!

Borrelia is transmitted by a tick the same way as the "Plasmodioum" is transmitted by the mosquito when it generates the illness we call Malaria - in the endemic areas of Colombia we call it "Paludismo", same thing.  When the tick bites his saliva spreads the bacterial and parasitic infections, as any other infections caused by a vector, meaning by an insect or a spider; that is why Lyme Disease is called a "Vector- born Disease".  This is CDC explanation about it: "The term “vector” refers to any arthropod that transmits a disease through feeding activity".  See?  transmits a disease but the difference here is that it doesn't transmit a simple fever that goes away with two weeks of treatment; the American TICK transmits a multi-parasitic and poly bacterial infection that causes a severe septicemia invading blood, organs, brain, bones, lymphatic system, circulatory system; feeds of tissues like the heart and the kidney and doesn't kill the host until years of pain and suffering.

And again, symptoms caused not only by a bacteria but by a parasite that evolves and responses to a treatment in a very different way than a regular bacteria; this is a protozoan that goes inside the cell or runs outside depending on the conditions; it is a little animal surviving and feeding from our tissue. Plus, because it is a strange body inside our body, bacteria is produced around it and this becomes a mini ecosystem inside the human body where the bacteria feeds off of the left overs of the parasites, and the bigger bugs hide behind the bacterial infection; multi parasitic - poly bacterial, plus viruses interacting, all together devouring everything around and moving and setting their camps in different places of the body.  It is said that Borrelia even jumps inside the white blood cells that come to attack her so now the immune system is infected and is taking that infection to other parts of the body, plus it becomes unable to kill the infection unless destroying itself...  if this doesn't sound like madness I don't know what is!

Tell me, is this something everyone knows and I don't? Is it that I am just "discovering the hot water"?  If so, why every article about Lyme Disease states it is a "bacterial" infection and why it is not publicly said that Borrelia Burgdorferi is really a PARASITE transmitted by a tick - some say it is also transmitted by lice and flies, I don't know. Yes, a parasite that comes inside the body of the human being when bitten by the tick, something so obvious as it is said when the malaria is transmitted.  Why this incredible obvious truth is denied?  just to neglect the reality that the US has a parasitic infection as severe or more like the third world countries diseases?  is it possible to hide a piece of this truth to soften the cruel reality and to maintain power?  Or it is said everywhere that Borrelia is a bacteria, to not scare the public?  LOL? Where in the world can a parasitic infection can be hidden and denied like if it won't hurt or won't hurt so bad?

If, in fact, a bacteria transmitted by a host, called an "intracellular bacteria" is a parasite, but small, that type of organism will require a special treatment, to eradicate it, to kill it,  different from a regular bacteria acquired by, for example, a cut or a pinch in a finger?  and this, again obvious reasoning will bring to question why, Borrelia Burgdorferi, such intracellular bacteria that lives and functions as any other big parasite is being medically treated with just two weeks of a regular antibiotic like if this will be enough to kill such complicated organism?  Have you heard of people getting cured of malaria after receiving two weeks of Doxycicline or Amoxacillin?  so why the ones infected with Borrelia Burgdorferi, a very well known smart parasitic organism, are treated as if they just had a minimal regular  infection?

More over, if the time has shown that the tick bite transmits not only Borrelia, who now we know it is a parasite, but also Babesia, an old recognized ferocious parasite and simultaneously the saliva of the tick also spreads other bacteria and co-infections such as the terrible Bartonella, Erlichia, Rickettsia - the causative of thyfus fever - and various viruses, how come this is treated like a regular infection, if this is a deadly bomb?
Read what CDC states: "Lyme disease is a tick-borne illness caused by infection with the bacteria Borrelia burgdorferi." "The bacteria that cause Lyme disease are transmitted through the bites of infected ticks." "Within days to weeks following an infectious tick bite, most patients (about 80%) develop a red rash called an erythema migrans (a.k.a., “EM” or “bull’s-eye” rash) around the bite site.  This rash slowly expands (up to 12 inches in diameter and clears around the center, but does not itch.  It is usually accompanied by general tiredness, fever, headache, stiff neck, muscle aches, and joint pains.  If untreated or not properly treated, some patients may develop arthritis, neurological problems, and/or heart problems weeks to months later.  "  "When Lyme disease is detected early, it is treated with oral antibiotics such as doxycycline or amoxicillin and treatment usually lasts for 10-21 days. In the later stages of Lyme disease, antibiotic treatment lasts longer, is more complicated, and patient response to treatment is slower." ... how can they be so far from the reality we Lyme Disease patients live? 10 days of treatment for what?

I am no expert in medicine nor in infectious diseases nor in bugs but I just ask since when or where  in the human medical history parasites are killed with two or three weeks or Amoxacillin, or Doxycicline?  No need to know a little better than that, the logic states that bigger bugs need antihelmintics or vermifuges not just  antibiotics.

Just this recommendation from the wise, from the experts in avoiding the proliferation of infectious diseases in the US is a wrong beginning.  Why would CDC ignore a parasitic infection and call it and treat it as a bacterial infection?  It is also scary to read that CD states that "Spread of the Lyme disease bacteria from an infected tick to a person is not likely to occur unless the tick has been attached to the person’s body for at least 36 hours."... not true!  The tick bites and  in it's mouth is the contaminated saliva, and it is passing it at the same time and as soon as it starts sucking the blood from the host. What logic states that the bacteria takes 36 hours to pass to the human body?  if the same CDC states that the infection could be spread just by trying to detach the tick, just by touching it with the bare hands, something immediate, imagine what can come every second the tick is attached sucking blood?
By the contrary of what CDC states,  experience has shown that everyone bitten by an infected tick gets the infection and needs to be urgently treated, so ignoring it is a parasite and then the severity of the  fast transmission of the infection  is another serious imprecision that causes an increase in the lack of proper, adequate treatment.

Now, has anyone seen a Borrelia?  some have pictures of it taken by microscopes or using special magifying lenses; but someone has seen a Borrelia when it evolves and grows and invades the intestine and other organs of the human body?  why it is said that Borrelia is so hard to see and to study  if it is a parasite and by being this type of organism you can see it with your "bare eyes", easily!  Not when it is hiding in the blood, nor inside the tissues but when it evolves to a regular worm life and goes to the intestines for example,  it can be seen and studied, like another regular big bug.  Is this new to medicine or maybe this is the result of  the absolute denial of the US when affirms that there are not parasites in this country? and this ignorance covers the possibility of treating and curing the sick people suffering with parasitic infections?

If Borrelia is not hidden under the false idea of a bacteria, stool sample tests could be finding Borrelia and adequately treating patients according to their level of infection.  Is this new to science again?  The similarity of the intestinal parasites expelled after receiving proper treatment, with the Borrelia shown inside the blood are shocking; the bug maintains it's shape but can grow to one or two inches, passing from being an almost invisible bacteria to a big powerful worm.  This is shocking news; prove me wrong!

Now, It is finalnally said that 40% of American ticks transmit "nematodes" which are parasites, some call them worms. Studies state thet Dr Willi Burgdorferi, who discovered the Borrelia, found 30 types of microfilarial worms in an adult tick, which might lead to conclude that if people is indeed infected with various types of parasites the treatment with just antibiotics given from 2 to 4 weeks is not going to clean the infection.  This certainly is the answer of why ill people relapse and cannot get completely cured.  Those cases cataloged as "Chronic Lyme Disease" could be just cases of people who have parasitic infections not properly treated.



It seems to me that by denying that Lyme Disease is a parasitic infection the wise are denying at the same time proper treatment, proper diagnoses, proper lab test, proper and adequate cures and medicines desperately needed.
  Hope Lyme Disease patients are treated correctly and cured; yes cured, because no matter how many say there is no cure for Lyme Disease yet, until someone treats it like what it is, a parasitic infection with bacterial co-infections. Amen.

Wikipedia  http://en.wikipedia.org/wiki/Parasitism#Types_of_parasitism  

IVERMECTIN FOR LYME DISEASE!

This, again, is just my opinion and my experiences as a Lyme disease sufferer. Would like to start saying that each person reacts differently to the treatments and that I have not found the miraculous cure yet, but there is hope, big hope now!

I was thinking on answering to a Facebook friend my thinking and experience with "IVERMECTIN"; but decided to do a blog about it because I'm having many requests about the topic, lol; I'm the "expert here"? No way!!!! But I'll try my very best because I do want to share my experience thinking it might be of some help!

Before starting let me say that I was going to say to my friend that precisely because we get to that point of desperation we become more resourceful and even creative. I was saying to her: "I guess sometimes we have to do things according to how desperate we are and that sometimes pushes us further or at times could make us crazier?

Well my Ivermectin story of course is product of desperation. I would have to tell my story with the Doctors and the treatments I have had already to finally get to the "Ivermectin chapter"! do I need to confess it all?

Being with a disease ten Doctors dismiss, facing death every day in pain and fear and seeing there was no hope, no care, no probabilities, well, if that doesn't make you "creative' what does? The instinct of survival is wonderful, so as many of you, I did research and found people suffering symptoms like me; so many they were innumerable. I went to this "Infectious Disease Specialist" (Doc number nine), after I "suspected Lyme, and gave him my "reduced list of symptoms", just 21... the tingling or twitching or even the bells palsy where not included.... and of course he said that "for sure I had no infection at all, but probably an allergy"... God bless the guy, ha.

Desperation plays a very crucial game in Lyme because it makes us so strong we move even though we can barely hold tight. So I started by understanding the cause of Lyme disease? Bacteria. No, it is not accurate. The word "BACTERIAS" in English doesn't exist, but it should have an "S" at least to describe Lyme Disease. So, because of this linguistic thing I found: multi-bacterial syndrome; more accurate right? But not complete, why? Because the tiny tick seems to transmit more than just many bacteria (s). It is not that the person MAY have "co-infections". The "may have; might have" is the second linguistic trick that is stopping Doctors and our selves to be treated properly and on time and are pushing us far from recovery!!!! Lymies have co-infections, not every case have the same bugs; but weird not to find multi or poly bugs inside a Lymie!

Co-infections of what or how?

• Found that Bartonella is a kind of bug.  Not a parasite, not a bacteria, it is it's own specie.  It "jumps" to the blood and swims freely in it's host.  This little round motile bug seems to attack the brain and the neuro-cognitve functions...  has to be killed to improve; no way to co-host-share the space with this one!  Strong medications are needed and you feel the "effect' of the fight inside our body when killing this one; it's certainly a terrible war, but you have to know you would win.  Cipro is good but Bactrim was my angel...  the swelling came down, even lost five pounds of "liquid" in about a week!!!  Yeah, have to fight her hard!

• Found that Borrelia is a bacteria indeed but has certain "intelligent" ways of surviving that some antibiotics won't kill her; other help her to hide inside the cells and some might hurt her. Even though it is a bacteria it is similar in something to Malaria.  I don't know why it is called "malaria like", because Malaria goes to the liver and kills the host fast; or goes to the brain and the damage is very notorious and fast.  Borrelia seems not to have a "favorite place' but all the body.  Muscles, bones, glands, circulatory system, heart, brain...? I really don't know scientifically this, just my conjectures...  In my thinking if Borrelia was as malaria I would be dead long time ago, and unless this is a dream I'm still here.  So, I define my enemy as a very powerful but one that is giving me more time to give it a fight.  Until we are not treated and we get to the worse case scenario where desperation is our closest friend,  meaning let's try to get to the point.  Borrelia doesn't die with two weeks of antibiotics,  it is not totally killed not even with the most powerful medicine of the GALAXY in such a short time; we need really long term treatments.  
• My answer for when I hear that long term antibiotic treatment is "not good", I just ask, but long term bacteria and parasites are better?
• It is a personal choice, but hey, when you get to desperation you'll understand the only choice is killing those bugs as long as it takes; or they kill the host.  There's no linguistic nor political arguing there; it is a no reverse discussion.  To treat or let die!

WHAT HAPPENS TO SOMEONE FULL OF BACTERIA INSIDE THE BODY, IN EVERY PART AND EACH ORGAN AND IT IS NOT PROPERLY TREATED DURING YEARS AND YEARS?

• Babesia:  this other bug inside us is a bigger one; meaning, in size and weight is bigger so it does lots of damage and just trying to get rid of it is harder and when it dies it leaves pieces so big they might hurt us worse, so we cannot kill as many but not as little so they won't have time to reproduce... etc.  Babesia is a parasite, how should we get rid of parasites?  It is also called a "malaria like parasite"; so, Borrelia is bacteria malaria like and Babesia is parasite malaria like; all relatives?  Meaning, all dangerous to human life spread by an animal and hard to  control, detect and treat?
• Can talk about Erlichia, viruses and so many others that come with Lyme, but I'm not an expert and just wanted to "slightly  picture"  what was gong on inside me or inside my Lymie friends...?

So after having antibiotics - tried so many -, getting different reactions; getting better and worse and living in a "Rollercoaster"  I found that I was not going anywhere.  Every time the lift was good but the downfall was faster, worse and deeper.  I thought something was missing, so after finally being tested and properly diagnosed last year I found the lab tests showed the Borrelia, first place, then  Babesia "WA1" and also two more bugs swimming in my blood.  The lab test reads that a small round motile microorganism is present in my blood and also other type of bugs 'elongated" ... ewwwwww?  oh yeahhhhhhhhhh; real reality that I have not been fighting!  my God, I had four different types of bugs and was not having treatment against them, woww!  How could I survive to that?  God is big certainly!

WHAT HAPPENS TO SOMEONE ANYWHERE IN THE WORLD WHO IS INVADED BY PARASITES AND NOT TREATED?  ANY HUMAN BEING OR ANIMAL?

• After Dr. "J"  diagnosed me he gave me Biaxin but taking it was a bomb to my chest and heart...  so much pain, so I asked him to change it to Bactrim to try.  Wow... it was like a "cure"...  it was not a 100% but just the first relief it gave me I have not felt it in years...  I cried of happiness and thankfulness and hope! ...   Had Bactrim and combined it and found it was not good; just Bactrim and Amox. were good together!!!  Bactrim took my swelling away, Bactrim did kill the bugs but didn't hurt me.  Anyways I was eager to "jump" to Flagyl to kill bigger bugs so tried them together and was terrible so  keep on the Bactrim for another month and started Flagyl and still had antibiotics until just had the Flagyl alone and start feeling good and better, but then again a downfall but slower...  my declining was not as strong...!!  WOW.  I thought I was finding some real help, so I decided to try the Ivermectin and this is the story why and how I am doing it:

• IVERMECTIN:    I heard about this medicine when I was living in my home country Colombia, South America ( have to clear it because some think it is in the district of "Columbia", lol).  I remembered a TV ad about "IVOMEC"  a veterinary medicine given to cattle, horses and I guess also for pigs, to de-worm them.  I remembered it say something like "against worms and parasites"... yeah, we become creative, mooo! 
• As I said before, I  had call  my Doctor in Colombia, finally found him after more than ten years without seeing him and lucky me, he still trusted me and without seeing me or testing me he decided to help me.  He first did with the antibiotics so this time when I asked about Ivermectin he had all the answers:  he said IT IS BEING USED IN HUMAN SINCE 1990; he said it is proven to really cure the most advanced cases of "poly-parasitic infections and malaria"; he used words like "multi-bacterial infections" - I thought that's me!!!!
• I asked Dr. Q. about IVERMECTIN in cases of Lyme Disease. He has not treated patients with Lyme Disease but he has treated thousands of patients with bacteria, parasites, worms and mostly every type of possible infection alone or combined.  He said they are doing studies in Colombia demonstrating the benefits of this medicine in these extreme cases and even in the simple ones like just a kid having "lice" in it's head - the use it topic here. 
• Dr. Q. stated Ivermectin was a medicine now produced for humans, not just veterinary - so the concentration of the product changes and the bottles are smaller; ha...  the cattle or horses ones are huge bottles of litters of medicine, the human presentation is a little bottle like the eye drops bottles!  I looked for it everywhere in he US and I couldn't find it, just the veterinary presentation.   Then I found some pills, three for $35 dollars/  something crazy. And one single dose as many state in the US or Europe is not enough, it simply won't work.  I finally got the drops from Colombia; my family and friends have literally saved my life so many times now; I'm in eternal debt!!!!
• What is and how it works?  My theory? ha! Being a veterinary medicine was the good beginning of  Ivermectin because medicine for animals is supposed to cure them because sick animals mean money loss; the opposite with humans because when we are sick we produce money to pharmaceuticals and everyone in the medical field...  so my thinking is that Ivermectin is produced to kill bugs; many and in the fastest easiest way. We don't need big pharmaceuticals to copy it and produce it at costly prices to "cure' Lymies... hope...
• Dosage?  Dr. Q. said it depends on the infection and the reaction.  The general rule is one drop per KILOGRAM of weight.  Remember US pounds are just 450 gr; in the rest of the world 500 gr is a pound.  So a kilogram is one thousand grams.  Don't mean to be confusing, just want you to look carefully to learn your weight in kilos not American pounds.  I wanted to start big and I took more drops the first time... bad joke!  It was really awful!  I called the Doctor and confessed my sin...  he asked me to cut the dose in half for next time and during the first month.  So I started again with less drops, half my kilos.  Took the Ivermectin that day and nothing else, any other medicine.  Felt a little tingling - I know.. -  later on a little blurry vision and then, hours later nothing...  NOTHING BAD....  like everything fine?   Could this be possible?
• Dr. Q. stated that most times after the THIRD treatment patients feel so good they sometimes stop the treatment thinking they're cured.  I though, not my case; this roller coaster has been with me now for almost five years I don't think a third treatment could make such difference... well... if I say it did it could sound like a plot? I'm not selling the product and don't let anyone use my words to sell it to you or anyone; copy righted ok???  My experience is that after the third treatment  I just know I start feeling HUNGER...  hunger that I have not felt since 2005 - 5 years now?  Hunger that felt painful at first because I couldn't recognize the feeling, ha... I was hungry for first time in years and I was so hungry it hurt, and I had to eat right away what ever, but then I was extremely happy with this feeling.  The awesome part was that the FOOD TASTED GOOD TOO and that was also unknown!!!!
• I found out that the first two or three days after I take the Ivermectin are not the very best, but are not as bad as the horrible herxes I've suffered with many treatments.  They are not the best days but are decent ones.  The I have some good days and even glorious super good days!!!  I have been able to work and to eat and to party and write and dream, and sleep. I smell right, taste right and read fine!  I am still not cured and my heart reminds me of it a lot, but boy I am having such better days!
• For first time I am not just feeling better, I dare to say I am recovering.  I am even afraid of saying this because I don't want to go down again, so I am not singing victory at all; but come on, if I feel so much better I hope others can feel the same.  For first time I am not feeling like I am exploding inside.  I am surprised to find I am kind of "normal"...??? I've been doing this treatment for just two or three months no more but I am different from last year for sure! 
• Ivermectin is a poison to the bugs so it is for us too, so we have to be careful to not ingest poisonous dosages.  Better little or small or few drops.  Do not get the veterinary medicine unless you know how to do the conversion to human dosages.  The little bottles for human are produced at a 6% concentration.
• Dr. Q. told me to keep on the Flagyl but stop the Bactrim while on Ivermectin and he said the treatment should be made for a minimum of three months and to even more than one year.  He said Ivermectin it is proven not to hurt in long term treatments. He said they first used "Albendazole" but found it could hurt the Central Nervous system, and studies revealed Ivermectin doesn't do this damage!
• I am seeing that now I need to go back to antibiotics to fight again the bacteria, now she cannot hide behind the big bugs.  I guess they co-exist really good: bacteria feeds from parasites left overs?  or viceversa, but they create an environment for subsisting out from a host and help one another, so we need to kill one by one, then kill two at the same time; or mix and combine treatments...
• One thing I have learned for sure:   what ever bugs these are their lives are cyclic so we need to combat them from time to time in different periods with various types of medicines so they won't adapt or create resistance.  
• Ivermectin is a new option but also Tindamax - Tinidazole-, Bactrim, Flagyl, Albendazole and many others that kill bugs; plus all the famous ones:  Doxy, amoxicillin, Zythro, Ceftin, Cipro, Factive, Malarone or Mepron and etc, so many medicines that are there to try to see if they help.

• NO THERE'S NO MAGICAL CURE, NOR A UNIQUE WAY TO TREAT THIS DISEASE.

• If your Doctor seems to be "experimenting" with you it is better than a Doctor that doesn't try to get a better recovery or remission and doesn't believe in changes and even risks.  This is an every day changing illness and you need to be in the head winning the every day battle.
• I do not recommend the use of any medicine nor treatment because I am not a Doctor, nor I believe in anyone trying to sell me anything they say would cure me; they just want to make their money with my illness.  Even proteins, vitamins, or any type of curative treatments.
• I just present my experience because it has been good after all!  God is big; 

Dr. Q is blessed; Dr. J is an angel of many and my Mother in heaven has been every second there for me guiding me; I hear her pushing me to stand up and research and never let me surrender.  My Mom read medicine as her passion and her hobby, how could I not try to help my self after being ignored and mistreated by so many Doctors?

•   I also thank with my sould and "my hurt heart" to my family in Colombia who has sent me so many medicines, finding the way to make them pass without being detected.  I'm sure sending bad drugs is easier than sending Amoxicillin, or Cipro, wanna bet?  
• My beloved husband and daughter and my brother and sister have been part of my recovery, of my every day suffering, of my new hopes and my suriving; without them this journey would have been terribly painful and impossible.
• But I'm happy because I've  learned to fight and that is more important than just being treated in a blind way by a super Doctor.  I believe in trying and researching and mutual help, and new ideas, and traditional medicine, and alternative, and everything that flies is an angel, so what?  
• I have learned to trust my body and that has been crucial in my recovery.  I had a time where I felt the need of eating pineapple... lol... then I discovered this fruit is used to de-worm children... I have been eating "papaya", which I never ate nor even when I lived in South America... well, it helps to clean the gut! LOL!  I'm killing the bugs, and cleaning the house in such a "naturalistic" way I never thought I could, my body is telling me how!   
• Every time I have palpitations I try to know why they are there?  I've found some come after taking certain medicines.  Some times palpitations are because of the lack of the treatment, like a scheduled medicine not taken and boom palpitations.  I learned my heart is talking to me and telling me how good or sick I am.  It is not easy and sometimes it has been really difficult but it is a learning process that is not written in any handbook as Dr. J clearly states in his blog of today.
• I was so bad I really thought  God had really abandoned me... plus all the doctors of the world... I don't think like that anymore.  I know this is just another battle in my life and I am going to win it by fighting it and by sharing with who ever needs help or has something to give me too.  I have learned to give but also to receive and that is something!
• Please read Dr. J's blog, he is very knowledgeable and he might really help you, medically and scientifically talking!  He now "promotes" Tindamax and Bactrim; before he didn't do it based on IDSA but now his experience has shown him that bugs are killed with these amazing medicines! Read and learn:  Sunday, February 14, 2010 Lyme 2010: A brief update

 Note:  I read about a guy who killed the bugs by spraying himself with poison for ants; I've heard about the ones that believe that just alternative medicine will help them by swallowing tons of nutrients; or what about just salt and vitamin C?  I even tried the silver but just used the nasal spray one; 'course it helps; ha...  everything helps when you are so extremely sick!  Learn that.  Even a hot shower helps, so be aware of what you do or take.

So yes, sometimes we reach desperation but do not loose the faith, God's help is there.  Good Doctors are there; good family and or friends are there; I'm here, LOL!  WE'LL WIN!

You can write me if you have any questions or opinions!!!

QUE VIVA IVERMECTINA!!!

THE WEIRD WORLD OF ILLNESS

SO SHOCKING TO BE IN THE MIDDLE OF THIS WAR...

• The insurers do not want to pay for the long treatments and are supported by the big Medical Boards who do not want to have the haze of treating complicated patients. So, where are we going?

• The Doctors don't know how to treat the illness so they have to dismiss it, like, your problem not mine!

• Then giving names to confuse the problem, is it chronic or post Lyme?  Or should it be called the neuroinflamatory or the neuroparasitic, or no, better the Tick born disease or the tick born co infection and more diseases or...

• Everyone around is trying to cure you, by selling you products for their own profit.  Rife machines, hyperbaric chambers, antibiotic protocols, natural protocols, DNA testing, Vitamins at $60 dollars each; the processed milk or the colostrum? The miracle curer or just the Vitamin C and salt?
• Having to pay every Doctor at top charges just to be humiliated, or the ones who dare to treat are so much more expensive - $500 for a consult is crazy - and then having to pay for treatment if lucky, so much for an IV antibiotic or $350 for a bottle of pills requiring months and years of these? Mepron can cost $1,800 the tiny bottle? no insurance of course! 
• Have you seen how many new foundations, charities and organizations have grown in the past months?  All receiving tons of money to help Lymies?   Do we all Lymies should get our own "non for profit" organization to be able to survive and pay for treatment?  Cannot work and cannot get disability...?

• No one knows what is really going on.  If they are not suffering it they do not want to hear about it. 

• It is scary, no sense, painful, weird, not very demonstrable, improbable or with  verifiability; not common, tests not sensitive enough, not known in your area; not probable to get cured, maybe might be in remission meaning could show up again at any moment; unpredictable, unforeseen, stealth...

We are the victims, we need help
not these!

NOTE:  LYME THE ROLLERCOASTER BLOG DOES NOT OFFER,  DOESN'T GIVE,  NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.  THESE ARE JUST MY THOUGHTS, IDEAS, RESEARCH AND EXPERIENCE SHARED.

LYME SEEMS NOT TO BE A SERIOUS ILLNESS!

This blog is just to express my opinions and thoughts.  I'm so tired of fighting ...

Last year I tried to study a class in a Community College,
but then I had an "explosion of symptoms" that incapacitated me
to accomplish that simple goal -just went to the first class, could never go back;
then sent messages to the Dean of the Faculty stating I was not feeling fine;
no one answered anything, and then boom, I was out for a year!
Not long ago I filed a petition for a refund of what I paid for that class -$600 very needed dollars. The College denied it saying:  "while we were sympathetic to your request ... you did not meet our criteria ...  which criteria I ask? "This might include but it is not limited to serious illness that prevents the student from completing the required classes..., etc".

I JUST WONDER:  LYME DISEASE IS NOT A SERIOUS ILLNESS
AND IS NOT AN EXTRAORDINARY CIRCUMSTANCE BEYOND
ANYONE'S CONTROL?
IF IT IS NOT, WHAT DOES?

• These so called constellation of symptoms cannot be ignored any longer;

• The pain and suffering is always worse; everyday more people is getting infected;

• Hello, is anyone out there?

Here's my long answer to their denial; ha, I'm even asking them to apologize.
They do not have to do it, I just wanted to place my self in a more respectful place.