Will start to share here the dialogs I have in my Facebook page with my Lymie friends. I have more than 800 friends with Lyme Disease in the US and the world; and 400 in Florida; yes Lyme Disease is real! Note: will not show the names of my friends unless they give me permission to do it.
CONFIRMED: ALL ANIMALARIALS ARE IMMUNOSUPPRESSANTS not good for Lymies!!! Included Mepron or Atovaquone, Qinnine, Plaquenil, (Hydroxychloroquine), Clindamicin and other. Yes we need to treat Babesia, the parasite inside the blood transmitted by the tick, kind of similar to the malaria falsiparum parasite, but because we have another lot more of infections going on, transmitted by the tick at the same time that we call "co-infections" we should not, must not, take anything to suppress our Immune system; this is the reason why my Dr said to better take "anthelmintics"! http://en.wikipedia.org/wiki/A nthelmintic
Anthelmintics or antihelminthics are drugs that expel parasitic worms (helminths) from the body, by either stunning or killing them. They may also be called vermifuges (stunning) or vermicides (killing)
Note: the few Doctors in the US that dare to give anthelmintics for Lyme are treating with ALBENDAZOLE which was demonstrated to cause damage in the Central Nervous system, this was seen in children who were presenting symptoms like Parkinson's; Ivermectin was found to be the less damaging and the best anthelmintic ever created. No I don't sell anything, just sharing my research and experience.
G. B. Maria, are you still taking Ivermectin? How long do you think you'll need to be on it? How are you feeling lately? Do you feel you're overcoming this disease by treating with anthelmintic meds?
Maria LymeDisease Yes and no and yes. I was taking it every week, feeling better every day. Decided to stop it after a year or so to see what happened, getting sicker, swelling and not good; needed to know if I was "cured" or still needed treatment. Going back to ivermectin tonight. I have "experimented" getting swollen, very sick to my extra limit, then taking the Ivermectin and voila, miracle, doing super good one or two or max three days later... how long? It seems it depends on how infected, invaded the person is. As Dr Phillips (West Palm Beach) said, until every parasite is not expelled or killed there will be Lyme!
My dose has been just 3 ml a week, imagine that, being functional, living fine, doing many things; of course I still need help to detox,and help for other symptoms like the thyroid or heart but as you know I do not have a Dr nor money so it is what I do with God's help and my beloved Dr who answers my questions by phone. I do think you can overcome Lyme with Ivermectin but not alone, I mean Ivermectin and other medications or herbals or treatments like for example bactrim for the smaller bacteria like Mycoplasma and herbals or supplements!
G. B. Makes me wonder if this battle can ever be won. I haven't read too many people who've been treating parasites say they were "parasite free". Many people who have been on anti parasite meds or herbs for years and still have them. Not very encouraging. Sorry you regressed when you got off Ivermectin, but glad your doing better now that you're on it again. Praying for you!
Maria LymeDisease Lyme is indeed very discouraging lol! Not just saying parasite free, I think it is not bacteria Borrelia free and this one going inside the white blood cells is the one allowing the proliferation of so many other organisms that other wise could be controlled. That is the basic problem; parasites "die easy" but they reproduce in thousands every month if not every day; if the bacteria is there feeding them, and them feeding the bacteria with their "left overs" the problem is much harder to eradicate.
Plus in my specific case, I was diagnosed late, my stronger symptoms started in 2005, I had antibiotics orals sporadically, enough to not die; was dgx in 2009 - the labs showed an acute infection, imagine that, how invaded I was. Continued with oral abx including plaquenil and other that the LLMD gave me and those hurt me more instead of helping, and just after that was when I found the ivermectin thanks to the Colombian Doctor who suspected parasites too. I am sure that if parasites are treated since the beginning, or as soon as possible, Lyme could be eradicated as the malaria is. Do you know malaria could be cured in 3 days? THREE DAYS? I saw my husband recovering from it in three days with a medicine called Fansidar; could this be possible with Lyme but the market prefer to have us sick for interminable years? hope not!
In 2009 my labs showed Borrelia CDC positive; babesia type WA1; and the wet Mount lab showed two more microorganisms "swimming" in my blood, some small round numerous, resembled toxoplasmosis but they said were similar not recognized; the other elongated not as numerous don't know what are those. Imagine someone surviving to just 4 zoonotic infections? this without even been tested for mycoplasma, bartonella, or viruses? so my Colombian Dr said do not take antimalarials could make you sicker, so I stoppped the Plaquenil the LLMD sent me, never went to see him again; and then started Ivermectin in 2010 I guess?
Imagine if instead any of the first TEN doctors i saw would have given me Ivermectin? I saw family practitioners, Infectious Disease specialists; Endocrinologists, heart specialist; another four more family ones; even Drs to whom I worked for free as a medical interpreter.. what if instead of not treating me at all one would have given me Ivermectin for a couple of months? lol ... Ignorance is not bliss!
Many friends here are trying the Ivermectin, most write me sentences saying something like: this is weird, I am feeling fine!! lol! Seriously!!! It is like not feeling exploding inside anymore, like the chest is not ripping apart, like your cells are part of your body again!
Let me clear that I started to get sick three months after I stopped Ivermectin and had no other medicines at all, something I wasn't able to have in years, before, anytime i stopped the antibiotics, in two days I was in the deepest sickest place; my swelling now started after three months, so this is great news.
My Dear friend F. K. just called to to say that when people asks her about for how long her son Bobby needs to be treated she responds, who ask a diabetic for how long he needs to take insulin? Lyme Disease needs to be treated as long as there is infection! Yes Mam!
E. F. Side effects of Ivermectin. Where do you get this stuff?
PD R: Maria I asked my mom about getting a doc in Ecuador to send me ivermectin; but supposively u can get horrible nuero side effects that can be irreversible ; any experience with this ???
D R Makes me happy I followed my gut instincts and said no to most all treatments. Artemisinin did wonders for me
PDR Ms Dana How did you dose Artemisinin ?? that's an herbal right ??
Maria LD Dear Dana sorry to tell you Artemisin as the other anti-malarials work in the immune system and suppress it, in fact, this is the reason why I am getting sicker dear G B; I started a couple of days ago a herbal medicine made from "Sacred medicine Sanctuary" that contains Artemisa Annnua, oh God, and the more I took it the more swollen I get... this is kind of funny, me writing to everyone to not take antimalrials and taking it and getting sicker by the minute. Yes, back to ivermectin tonight!
Maria LDSo just to clear this up, I am swollen not because I stopped the Ivermectin but because I started a treatment with Artemisa annua, precisely what I was posting to not do I was doing, oh yeah, live and learn; thank God I found out on time, I'm about to explode!! Where is my Ivermectin caramba lol!
Maria LD: E F and P D R by the contrary Ivermectin seems to be a helper with the neurological infection; it is an anthelmintic made to kill parasites and protozoans; Lyme is a bacteria Borrelia that goes intracellular, especially inside the white blood cells - parasitic?; - the Babesia is a parasite inside the red blood cells, in fact two parasites jump inside the red blood cells at the same time, double worse than the malaria; so, if we must not get anti-malarics because those work by immunesuppression, what to take? anti-parasitics, antifilarials andti-protozoans than won't hurt the immune system nor the Central Nervous system. I have taken Ivermectin for more than a year, small doses and it has been a blessing, by the contrary the Bells Palsy and the neurological symptoms are gone! (The Dr has the Bells Palsy registered in my record, but I don’t have it anymore nor even a small twist in my face!) God is big!
These are my opinions and my conversations with my friends!I hope they are of some help to others suffering not knowing what is going on! It is not a medical advice nor intends to replace any medical information.
NOTE: LYME THE ROLLERCOASTER BLOG DOES NOT OFFER, DOESN'T GIVES, NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.
E. F. Side effects of Ivermectin. Where do you get this stuff?
PD R: Maria I asked my mom about getting a doc in Ecuador to send me ivermectin; but supposively u can get horrible nuero side effects that can be irreversible ; any experience with this ???
D R Makes me happy I followed my gut instincts and said no to most all treatments. Artemisinin did wonders for me
PDR Ms Dana How did you dose Artemisinin ?? that's an herbal right ??
Maria LD Dear Dana sorry to tell you Artemisin as the other anti-malarials work in the immune system and suppress it, in fact, this is the reason why I am getting sicker dear G B; I started a couple of days ago a herbal medicine made from "Sacred medicine Sanctuary" that contains Artemisa Annnua, oh God, and the more I took it the more swollen I get... this is kind of funny, me writing to everyone to not take antimalrials and taking it and getting sicker by the minute. Yes, back to ivermectin tonight!
Maria LDSo just to clear this up, I am swollen not because I stopped the Ivermectin but because I started a treatment with Artemisa annua, precisely what I was posting to not do I was doing, oh yeah, live and learn; thank God I found out on time, I'm about to explode!! Where is my Ivermectin caramba lol!
Maria LD: E F and P D R by the contrary Ivermectin seems to be a helper with the neurological infection; it is an anthelmintic made to kill parasites and protozoans; Lyme is a bacteria Borrelia that goes intracellular, especially inside the white blood cells - parasitic?; - the Babesia is a parasite inside the red blood cells, in fact two parasites jump inside the red blood cells at the same time, double worse than the malaria; so, if we must not get anti-malarics because those work by immunesuppression, what to take? anti-parasitics, antifilarials andti-protozoans than won't hurt the immune system nor the Central Nervous system. I have taken Ivermectin for more than a year, small doses and it has been a blessing, by the contrary the Bells Palsy and the neurological symptoms are gone! (The Dr has the Bells Palsy registered in my record, but I don’t have it anymore nor even a small twist in my face!) God is big!
These are my opinions and my conversations with my friends!I hope they are of some help to others suffering not knowing what is going on! It is not a medical advice nor intends to replace any medical information.
NOTE: LYME THE ROLLERCOASTER BLOG DOES NOT OFFER, DOESN'T GIVES, NOR INTENDS TO GIVE ANY MEDICAL ADVISE NOR MEDICAL RECOMMENDATIONS.
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