4/10/2009
LYME: WHAT NOT TO SAY!
Hi,
I read this blog of this woman who said
that this other Doctor did take care of her
and looked at her symptoms, but the surprise
was because she had gone to so many Doctors
and no one had really helped her, so she wondered
what she said differently this time, or what moved
this Doctor that didn't move the others.
So, how to approach a Doctor when you are
multi-symptomatic and feeling that you are
almost dying in pain and of this
unknown strange illness? my truly honest
advise? do not tell everything that you have!
Sounds weird and not recommendable?
Well, it seems that Doctors just want to treat one
simple easy illness and go to eat lunch earlier!
I give it a try and went to an "infectious disease
specialist" and made a list in the computer, very
well presented, of the many symptoms I have and the
ones I have had that had gone with the antibiotic
treatment... well... this poor Doctor didn't know
what to do, how to diagnose me. He end up writing
"chronic bronchitis" when I have never coughed nor
have respiratory problems - thank God is the only
thing I do not have!!!!- But the Doctor was so
swimming in such deep waters that he could barely hold on!
And I assume this is the reason why, also, the
endocrinologist told me, at the end of the consult,
"and you are going to be okay, and you do not need
to come here anymore, for nothing else". To what
I said: really? what if I do? and he insisted,
"no, you do not need to come back, don't come back"!
My bet is that this incredible list of pains and
symtoms scare the Doctors. The one Doctor I thought
was really going to help me, because he knew me and
he knew I used to work in the medical field so
at least he can - in theory - trust me, said after
reading my interminable list: "wow, all these you have?
I bet is is an allergy, lets try these nasal sprays
and these steroids"!
But what I really need you to think about is the
"mental" situation... if the Doctors see many symptoms
they would pass the hot potato to a psychiatrist, and you
would remain in pain until the last of your days...
You might not now, yet, what is to wake up with pain
over all you back; with pain in all your muscles;
with pain in your joints maybe knees or shoulders?
with tingling like if you don't know if you can feel
or not your extremities; with palpitations and pain
in the chest; with difficulty swallowing feeling that
the air is not passing anymore; with pain in the neck,
and in the thyroid and in the pituitary,
and of course, with fear... yeah, the magic word: FEAR.
If you declare you have fear when you feel the palpitations
and the chest pain; fear when you cannot really move your legs
and they hurt; fear because the pain in the back is so sharp
that you cannot tell if you have a knife stuck or not; fear
of not breathing or fear that the paramedics won't be able to
come on time or to fix what ever is that you have...
if you confess that FEAR, they - the Doctors- think
it means that you don't have Lyme disease or any other
illness different from a mental one; so you wont' be treated
for the bugs that are affecting your health. They are probably
going to say: "You seem to have panic attacks"! "You look so anxious!"
That fear is normal; anyone would feel the same in such circumstances!
Hope you can find a way to talk to these Gods,
I really haven't!
Labels:
babesia,
bacteria,
borelia,
borrelia,
borrelia burgdorferi,
CDC,
fatigue,
idsa,
ilads,
Lyme,
Lyme disease,
multiple symptoms
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